Recent content by amysmom

The only thing I would add is a list of all the medications your child is taking. You probably won't ever need it, but in case of an emergency, it would be a good thing to have.

The only thing I would add is a list of all the medications your child is taking. You probably won't ever need it, but in case of an emergency, it would be a good thing to have.

The vest is amazing and will give you and your daughter alot more flexibility. When we went from physical therapy to the vest we realized the vest did a much better job. An added benefit is that it will give your daughter a sense of responsibility in handling her CF. Even though you're managing...

The vest is amazing and will give you and your daughter alot more flexibility. When we went from physical therapy to the vest we realized the vest did a much better job. An added benefit is that it will give your daughter a sense of responsibility in handling her CF. Even though you're managing...

A wonderful/nurse friend of ours told my daughter (30 yrs old) to find out what your doctor considers dangerous then measure it every time. It's amazing how little blood there really is when it's measured. This has helped my daughter feel alot less stressed every time is happens. She also...

A wonderful/nurse friend of ours told my daughter (30 yrs old) to find out what your doctor considers dangerous then measure it every time. It's amazing how little blood there really is when it's measured. This has helped my daughter feel alot less stressed every time is happens. She also...

My daughter (30 years old) has CF. I'm always trying to think of ways to<br>really support her, not just cliches about helping a person who is sick.<br><br>I'd love to hear what you most want/need from someone close to you to <br>feel supported and cared about.<br><br>I'd appreciate anything! I...

My daughter (30 years old) has CF. I'm always trying to think of ways to<br>really support her, not just cliches about helping a person who is sick.<br><br>I'd love to hear what you most want/need from someone close to you to <br>feel supported and cared about.<br><br>I'd appreciate anything! I...

My daughter seems to have redness and swelling after picc lines.  It goes away in about 4 days.  I was concerned too but it's not a problem.  <img src="i/expressions/face-icon-small-smile.gif" border="0"><br>

My daughter seems to have redness and swelling after picc lines. It goes away in about 4 days. I was concerned too but it's not a problem. <img src="i/expressions/face-icon-small-smile.gif" border="0"><br>

My daughter seems to have redness and swelling after picc lines. It goes away in about 4 days. I was concerned too but it's not a problem. <img src="i/expressions/face-icon-small-smile.gif" border="0"><br>

Our daughter is 30 years old.  She was diagnosed at 6 months.  Most of the newly diagnosed children at that time went to a CF Center.  The ones that didn't did much worse than those<br>that did.<br>

Our daughter is 30 years old. She was diagnosed at 6 months. Most of the newly diagnosed children at that time went to a CF Center. The ones that didn't did much worse than those<br>that did.<br>

Our daughter is 30 years old. She was diagnosed at 6 months. Most of the newly diagnosed children at that time went to a CF Center. The ones that didn't did much worse than those<br>that did.<br>

Our daughter is 30 years old.  She was diagnosed at 6 months.  Most of the newly diagnosed children at that time went to a CF Center.  The ones that didn't did much worse than those<br>that did.<br>