Recent content by auntiepam

LookingforPeace- One day at a time! My Dad's twin brother is also in lates stages of IPF. Know that you are not alone, and that your brother wants you to live and enjoy every single day.

MistyJo- I just lost my dad to IPF. Broke my heart. Lost my mom several years ago. It's a terrible disease.

I wouldn't be worried. I received the same email and I haven't purchased anything like that. It was probably just a coincidence.

that's awesome!!! So happy for you!

Wild Cherry, I'm sending hugs your way! Our family was where you are at a couple of months ago. I drove myself crazy trying to convince myself that my neice did not have this disease or try to assure myself that she would have a "mild" case. Thank God, so far so good. She's beautiful, and...

From everything that I have studied, the child must receive a mutation from both parents. That is the difference between a carrier and somebody who has the disease. My niece has R1066h and D508, she is also being treated at a reputable CF center. All of the Dr.'s advised that R1066H was a...

Hi Steve! I have been researching my niece's second mutation, R1066H, I have been finding conflicting information regarding what class it is in. Some info. is telling me it's a Class IV and other info. is saying it's a Class II. Any information would be greatly appreciated. I am new to the...