Recent content by brandonalbert

He is 9 years old. How is your daughters health?

My son has the same mutations. I can not answer your question but would love to know that answer too. How old is your daughter?

Can I buy this in Canada?

I either missed it or you need to add the mutation V520F to the list please :)

That does suck. Maybe the combo that they are testing will work? I pray it will.

Taylersmom: You are doing an awesome job for your son! Keep us posted on your progress. Crossing my fingers for you :)

I wish I knew the answer to this too. There does not seem to be much info out there on v520f. If you hear or read any news please let us know! I will do the same.

Thank you for taking the time to reply, I really appreciate it. Sound like you have a good balance of what works for you in your life. That's what we aim to do is try and find what works for him in his life. It is great to have your wisdom since you have lived this everyday. Thank you for...

v52of Thank you for your post. It is nice to hear from someone who has the same mutations as my son. Although I realize that everyone has different symptoms. I have been trying to find out as well if there is hope for Kalydeco for V520f. I pray that it will help with your lung function. My...

Thank you for the great info! I did check the website and the info was very informative. My son has had a lot of stomach issues. He takes enzymes with his meals and they have made a big difference in making him feel a lot better. He has had no lung infections, but his sinuses are very...

Hi, My son has v520F and the deltaf508 mutations. Was wondering if you had any info on v520F & what class it falls under. Thank you JHL Mom to BHL 8 w/cf

My son who is 8 years old was just recently diagnosed with CF. He is on enzymes which have made his tummy feel much better. He has never had a lung infection or major cough, we feel very fortunated for that. His mutations are v520F, & DeltaF508. I was wondering if anyone has any info on V520F...