Recent content by CDavis

Thank you! We will try this.

My 5yr old got a feeding tube (the mic-key button) about a year ago. We've always let her control who touches it and when. This makes changing it really hard, but we only change it quarterly. We've started running it into the night and come in to disconnect it late after she is asleep. She...

My 5 yr old gets legs pains a lot. I'll usually sit by her and massage her legs. My husband and I have thought it was growing pains. We both experienced leg pains while growing up. I'll have to ask our CF Dr. if there could be more to it.

Thanks everyone for your answers. I didn't realize that fighting it can cause things to get worse. I too wuld like to know if staph cultures in everyone or just CF patients. I was told my my clinic Drs years ago the H.flu is comon to everyone. Thanks.

Tysmama If your 2yr old is like my cfer was at 2 he wants to do everything himself. When mine was 2 1/2 I bought myself a bottle of multi vitamins and every day at breakfast I had her watch how amazing mommy was at putting it in my mouth and swallowing it with a drink. It took a while before she...

My daughter has cultured staph auras (Not MRSA) in her lungs. I asked about treating it and the clinic told me staph is just part of having CF they don't treat it unless it's symptomatic. Is this right? Normal? Or just lazy? She has a known and treatable lung infection but instead of trying to...

I just want to say DITTO to all that "Printer" posted. Ditto with an exclamation mark!

I just want to say DITTO to all that "Printer" posted. Ditto with an exclamation mark!

Ditto... It's the hard water. We never did anything about it no vinegar, no distilled water or bottled water. It's just some steralized mineral buildup. It won't hurt anyone. But I may have used some vinegare if I had know about it. I guess none of the parents where I'm form are bothered by it...

Ditto... It's the hard water. We never did anything about it no vinegar, no distilled water or bottled water. It's just some steralized mineral buildup. It won't hurt anyone. But I may have used some vinegare if I had know about it. I guess none of the parents where I'm form are bothered by it...

This is a huge decision, my husband and I made it also. Our first child has CF and it took a long time, a lot of research and lots of prayer and faith but we now have a second child also. I thank God he doesn't have CF but if he did have CF we would not love him less. If he had CF he would still...

This is a huge decision, my husband and I made it also. Our first child has CF and it took a long time, a lot of research and lots of prayer and faith but we now have a second child also. I thank God he doesn't have CF but if he did have CF we would not love him less. If he had CF he would still...

My 4 yr old daughter had a G-tube also called a Mic-Key button place this past Dec. It's been a difficult experiance for me. My daughter adjusted to it very quickley. She is able to connect it to herself and disconnect it easily. We only use it 1 or 2 times daily so she takes enzymes right...

My 4 yr old daughter had a G-tube also called a Mic-Key button place this past Dec. It's been a difficult experiance for me. My daughter adjusted to it very quickley. She is able to connect it to herself and disconnect it easily. We only use it 1 or 2 times daily so she takes enzymes right...

How can I find out more about the mutations getting re-classed? My child has a rare mutation that wasn't classed as of about 3 years ago.