Recent content by DianeM

I am also a parent of a 13 year daughter with CF who is 8 months on a waiting list for a double lung transplant. Writing on this CF forum is an incredibly positive thing to do since people on this forum can understand what your feeling more than anyone else possibly could. Continue to do so...

Our cat, too, has a fettish for tubing. My daughter has only recently started needing oxygen at night, but, my cat has definitely discovered the new tubing in Danielle's room. I think it all started with the tubing for the GTube feeds. After puncturing a hole in this tubing, she got a tasty...

Congratulations on your lung transplant. My daughter, Danielle, is 13 and has been on the list for a double lung transplant (Toronto) for four months. It is so relieving to hear about other CF teenager's successful transplant surgeries. My daughter is so petite. I don't know how long our...

My daughter with CF's FEV1 is 28%. She is on a transplant list.

My 13 year old daughter's FEV1 is 28%. She is currently on transplant list.

My 13 year old daughter with CF also required a lobectomy at the age of 6. She ended up having her right middle and lower lobes removed due to a chronic infection concentrated in those lobes. After a few bronchoscopes and frequent IV antibiotics over a course of year, it was recommended by a...

Thank you so much for responding...It is nice to hear from someone who has experienced a lobectomy so that we know what to expect with the surgery as well as the recovery time. Your situation sounds very similar to Danielle - although it is the right lower and middle lobes that are affected...

Thanks for all of the advice. TeeHee is my wonderful sister-in-law doing some research for me as I have been so busy with my 6 year old daughter. She has been in and out of the hospital over the past year - with a total of 6 tune-ups with a span of 14 months between the first and and the...

Thanks for your advice. My daughter, Danielle, has quite a few specialized CF doctors on her case and the surgeons are going to perform the lobectomy as a last resort...We hope that it doesn't come to that as we may be almost there. Is there anyone who knows about lobectomies or has had it...

Hi. My 6 year old was diagnosed last year with cystic fibrosis related diabetes...We are still doubtful to a certain extent about the diagnosis because her sugars seem to go up only when she has a lung infection and then stay relatively normal otherwise (diagnosed with CF at 6 months - major...