Diagnosed with CF at age 24. Currently end stages and don't want a transplant or treatment anymore. I've stopped feedings and as a result have lost 50+ lbs from Dec to May. I have pneumonia and don't want treatment for it. I've fought for so long, and I'm tired of fighting!
Female 37 yo w/CF mutations delf508 and R117H. At end stages (diagnosed at age 24 via blood work; symptoms prior: DIOS, failure to gain weight, bronchitis, sinusitis, nasal polyps, and pneumonia)