Recent content by flatfordl

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    Kalydeco question

    <br>Thanks LouLou for the response! All makes perfect sense for growth and development. Best regards, Chuck
  2. F

    Kalydeco question

    <br>Thanks LouLou for the response! All makes perfect sense for growth and development. Best regards, Chuck
  3. F

    Kalydeco question

    I've seen post in the past about taking less enzymes or none at all while on Kalydeco. Can anyone who's on this shed more light. I know the docs are going totell patients to continuetaking enzymes as directed, but would be nice and a huge quality of life factor if this drug limited or even...
  4. F

    Kalydeco question

    I've seen post in the past about taking less enzymes or none at all while on Kalydeco. Can anyone who's on this shed more light. I know the docs are going totell patients to continuetaking enzymes as directed, but would be nice and a huge quality of life factor if this drug limited or even...
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    Sports Organization Discriminating against my daughter w/CF

    One thing we do with Avery (age 8) while she is playing softball is pack her the gatoraide power gels for a quick pick me up. Also, during those hot days of the summer when she is playing multiple games her snack is pickles as well as a shot of pickle juice. Now this is not by any means a high...
  6. F

    Sports Organization Discriminating against my daughter w/CF

    One thing we do with Avery (age 8) while she is playing softball is pack her the gatoraide power gels for a quick pick me up. Also, during those hot days of the summer when she is playing multiple games her snack is pickles as well as a shot of pickle juice. Now this is not by any means a high...
  7. F

    Sports Organization Discriminating against my daughter w/CF

    One thing we do with Avery (age 8) while she is playing softball is pack her the gatoraide power gels for a quick pick me up. Also, during those hot days of the summer when she is playing multiple games her snack is pickles as well as a shot of pickle juice. Now this is not by any means a high...
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    yearly bronchs

    Yes, our clinic does yearly bronchs. But we can decline to have one if we want. Our clinic follows the same principle as yours, that they are a form of therapy and a way to keep a close eye on the effects of the disease on the childs lungs.
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    yearly bronchs

    Yes, our clinic does yearly bronchs. But we can decline to have one if we want. Our clinic follows the same principle as yours, that they are a form of therapy and a way to keep a close eye on the effects of the disease on the childs lungs.
  10. F

    yearly bronchs

    Yes, our clinic does yearly bronchs. But we can decline to have one if we want. Our clinic follows the same principle as yours, that they are a form of therapy and a way to keep a close eye on the effects of the disease on the childs lungs. <br /> <br />
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    How are you treating your MRSA?

    My daughter has cultured MRSA for two almost three years now. Her MRSA is now considered colonized. Our Docs have never treated her for it and always acted like it was no big deal. Until her last CF Clinic when he told us she needed to start Tobi 28 on 28 off. Keep in mind we have never had...
  12. F

    How are you treating your MRSA?

    My daughter has cultured MRSA for two almost three years now. Her MRSA is now considered colonized. Our Docs have never treated her for it and always acted like it was no big deal. Until her last CF Clinic when he told us she needed to start Tobi 28 on 28 off. Keep in mind we have never had...
  13. F

    How are you treating your MRSA?

    My daughter has cultured MRSA for two almost three years now. Her MRSA is now considered colonized. Our Docs have never treated her for it and always acted like it was no big deal. <br /> <br />Until her last CF Clinic when he told us she needed to start Tobi 28 on 28 off. Keep in mind we...
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    Spin: At what age did you quit needing applesauce to swallow enzymes?

    Avery was 2 years old, my wife was in the food court and she didn't have any and Avery refused ketchup. So my wife challenged her to do it after she showed her how to do it, as they say the rest is history.
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    Spin: At what age did you quit needing applesauce to swallow enzymes?

    Avery was 2 years old, my wife was in the food court and she didn't have any and Avery refused ketchup. So my wife challenged her to do it after she showed her how to do it, as they say the rest is history.
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