Recent content by ForeverDance

You could try PEP. I know 3 years tends to be a bit young but it depends on the child. My DD started doing PEP instead of CPT 4 months before she turned 3. She really started to hate doing CPT so we explained that she could stop doing that if she learned to do PEP. It did take a while. We got...

My DD had symptoms like you describe. She would be fine for a few weeks and then she would slowly stop eating and finally start vomiting (which would last all night long). What she would throw up would be thick and usually contained food from as much as 14 hours prior. We would do some extra...

Lots of good advice already given here. I just wanted to add that the best suggestion I can give is to take each new challenge as it comes. Try not to get overwhelmed with all the possibilities and "what ifs". The first little while after diagnosis can be really tough. Try to take some deep...

When my daughter was diagnosed I was worried about a lot of the same things. I also have an older daughter who plays basketball competitively. We travel a lot and are in public places a lot. We learned and adapted. In public places I only worry about keeping her away from people who are visibly...

I'm in Canada and they really don't recommend the vest here. My dd is 2.5 now and we do CPT twice a day(more if she's sick). She will transition to PEP when she is ready (15-30 mins I believe). We have been told by our clinic that both CPT and PEP show similar results and both are better than...

My dd also has a great deal of trouble with her bowels getting clogged. She has been on daily doses of PEG (1.25 tsp twice a day) for a wile but we still found that she was having problems (she was never hungry and would vomit about once a month). We brought up the concern at the next clinic and...

If it contains fat you need enzymes and if it doesn't you don't. Cereals and breads tend to be lower in fat content so depending on your body's natural abilities you may or may not be okay without taking enzymes. Most candies contain no fat so they are fine. Your best bet is to look at the fat...

I also agree that choosing not to put a child in daycare does not equate to keeping them in a bubble. We made the decision not to put our DD in daycare because our clinic "strongly suggested" that it was not the best idea for her. There are so many sick children and it is very difficult to keep...

I remember struggling with the CPT when my daughter was very small. She really hated it. Sometimes I would sing to her and sometimes I would just talk to her. I was told by my clinic not to get in the habit of doing it while she was sleeping so that she can learn to adjust to it as a normal part...

I don't have CF, I'm just a carrier, but I have quite a bit of experience with endometriosis. I was diagnosed 12 years ago. My symptoms are currently pretty mild and have been since I got pregnant with my last daughter. Before that, most of my issues occurred around the time of my period. The...

I love that show! I can't wait to see it.

My baby girl is also DDF508. She was diagnosed at 10 days and it was a shock for us as well. I also found those first few months very hard. It's really tough to come to terms with what is going on, and it can be really scary. As with most things, I found that time heals. You get into a routine...

Just yesterday my husband got our Great Strides team logo tattooed on his chest. It is a teddy bear with lungs and the team name above it "Kaylee Bears" (named after our daugher with CF).

I didn't realize there was a character on Degrassi with CF. I haven't watched that since the original when I was a kid (which was a while ago now) and my DD15 just never got into it.

That's great! CF really is a disease that doesn't get enough attention.