Recent content by Hopeandlove

Hi Elizabeth, My husband has cf and every few years he gets a bronch. It cleans him out really good and they find the right bacteria to treat. He has always recovered fine from them. He too has a hard time coughing stuff up and after a few rounds of failed treatments they do a bronch. I would...

Hi Taylor, My husband has cf and was diagnosed at 3 m old. He is on Tobi cayston pulmozyne hypertonic saline and alternates these every other month. He does the vest twice a day for 30 mins at a time and acapella every now and then. It depends in what inhaler he is doing but it usually takes...

My husband is going to start a trial on kalydeco next week. We are very excited but know he might get the placebo pill. I've been reading some things on here and it says the pill will not work on d508 mutation. Can someone explain this to me? Is it true? Is there anyone who has this gene that...

Hi! I don't have CF but my husband does. We did ICSI and got pregnant on the first try. We now have twin girls that are 10 months old. Good luck with your journey! Feel free to pm me with other questions. :)

Hi, we live in Columbus and my husband has been going to childrens hospital since he was 8. They very supportive, and extremely knowledgeble. One of his docs, Dr. McCoy helped create the new inhaler cayston. Some other amazing docs include Dr. Kirkby, Dr. Heintz, and Dr. Holtzlander. They work...

Hi, we live in Columbus and my husband has been going to childrens hospital since he was 8. They very supportive, and extremely knowledgeble. One of his docs, Dr. McCoy helped create the new inhaler cayston. Some other amazing docs include Dr. Kirkby, Dr. Heintz, and Dr. Holtzlander. They work...

Hi, we live in Columbus and my husband has been going to childrens hospital since he was 8. They very supportive, and extremely knowledgeble. One of his docs, Dr. McCoy helped create the new inhaler cayston. Some other amazing docs include Dr. Kirkby, Dr. Heintz, and Dr. Holtzlander. They work...

Hi Karen, My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

Hi Karen, My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

Hi Karen, <br />My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your...

Hi Karen, My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

Hi Karen, My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your way!

Hi Karen, <br />My husband with cf has lots of digestion problems but recently we started drinking green smoothies from the book "green for life" by Victoria boutenko. They have tremendously helped him and it might be worth a shot to help your stomach heal. Sending lots of prayers and hope your...