Recent content by jjnorthport

  1. J

    MDR pseudomonas treatments?

    Thank you for all of your advice. I am on to Tobi and cays ton and do hypertonic saline 4x a day. My question is how can I get phage therapy in the USA? again thanks for all advice. jj
  2. J

    MDR pseudomonas treatments?

    I have mdr pseudomonas, I spend so much time trying to clear the thick mucus out that I am exhausted. There are no oral antibiotics for me,and the doc says I'm not exhibiting fevers due to infection so no IVs. I just wish I could get some relief from this mucus. What treatments has anybody been...
  3. J

    Question for this with CFRD

    I started taking oral meds to begin with. It worked for a while, but as the years progressed I started 70/30 insulin once a day and now progressed to 70/30 twice a day and coverage with regular insulin if needed. I am in good condition with latest A1C of 6.2 Joe 49 w/cf, cfrd
  4. J

    Medicare Advantage Plans

    I would like to get opinions from the cf community about how well you like your advantage plans if you have one. I am currently shopping for a new one because my current insurance through UnitedHealthcare is dropping my doctors from thier network. I did like how all my needs were met with...
  5. J

    anyone taking beta blockers for high blood pressure?

    I am on lisinopril for BP. Dont know if it is abeta blocker, but works. I kept asking the doc when at appointments why my BP was always so high. His reply was, "probably from being at clinic raised my pressure". But even at home it was high, so lisinopril was prescribed. I dont seem to have...
  6. J

    diabetes anyone? helppppp

    First, I'll tell you my meds, 70/30 insulin in the morning and regular insulin at dinner. I really don't eat a normal breakfast or lunch. I have buttered toast and a protien shake for breakfast. A banana, yogurt, and granola bar for lunch. Snacks in between and a normal dinner, all the...
  7. J

    diabetes anyone? helppppp

    I was diagosed with CF at birth and CFRD at 20. I remember being thirsty all the time at this point in my life. The clinic nurse tested my urine with a test strip that revealed sugar in the sample. They did a long glucose test which required me drinking a very sugary beverage and blood draws...
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