Recent content by jledeveaux

Orkambi question... has anyone experienced elevated blood sugar levels? My 12 yo daughter, who is supposedly glucose intolerant but has always had completely normal blood sugar levels on an every day basis, has had somewhat high numbers ever since starting Orkambi... two weeks ago. It's...

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. <br /> <br />Thanks! <br /> <br />~ Lindsay <br />* Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. Thanks! ~ Lindsay * Mom to Ella - 6 yrs old w/ CF

Does anyone have any information or experience trying to get a compassionate release of a drug not yet on the market? Anything you know, have learned, or heard about would be great. <br /> <br />Thanks! <br /> <br />~ Lindsay <br />* Mom to Ella - 6 yrs old w/ CF