Recent content by jpear1977
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J
My daughter needs a friend
me too- My son is 12 and would love to talk with others who understand what he is going through. My facebook name is Julie Kawalec-Pearson -
J
looking for other that want to connect
Group chat I think we have tried to do this before. But I know my son has not wavered in wanting to speak with someone. What do you think is best. Trying to set up a hangouts/skype date or making their own facebook profiles with a page just for them? My son is only 10 so i won't let him have...- jpear1977
- Post #3
- Forum: Teenagers and Young People
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J
Healthiest places to live in US with good doctor?
also relocating we are relocating to Texas from Illinois. We got to UW Children's hospital in Madison, WI and have received excellent care for my son. My oldest lives in the Odessa, TX area and we want to be closer to him and our grandbaby. My CFer is 10. Odessa is an oil town and I am a bit... -
J
Newly diagnosed with the S945L mutation - anyone ever heard of it??
f508 and S945L My son has the same mutation. How is your child now. Mine is on treatments twice a day, azithromycin (MWF), pulmozyme, and saline chloride, and now starting Vancomycin as a neb for an infection.- jpear1977
- Post #26
- Forum: Newly Diagnosed
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J
Newly Diagnosed with S945L, do you know anything about this mutation?
My son has the same mutation. How is your child now. Mine is on treatments twice a day, azithromycin (MWF), pulmozyme, and saline chloride, and now starting Vancomycin as a neb for an infection. -
J
Anyone with S945L ?
My son is nine and was recently diagnosed with F508 and S945L. I would love to hear how everyone is doing that has this mutation and what treatments you are one. I can't seem to find anyone with the same combo as him.