Hi! I doubt you check this still but in the chance you do, let me introduce myself. My name is Amy and I have two kids with the same mutation as your child. We have started an online Facebook page if you would like to join. It’s just for families with these mutations. If you want to join, find me on Facebook Amy Bergan Ellison or just go to Facebook and search “cystic fibrosis 2789”. Take care!
