Recent content by Kayere
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Looking for a little advice on what my son could have? Negative sweat test.
We just came back from his specialist and he says if it is cf that it isn't why he is having GI issues. The pancreatic test came back too positive for his pancreas to be causing his issues. His fecal elastase test came back over 500. When he said his test came back perfectly fine, I gave up the... -
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Looking for a little advice on what my son could have? Negative sweat test.
I pushed for my son's GI specialist to see him as soon as possible and got an appointment on Thursday. I'm going to push for a referral to a CF specialist based on the info you guys have given me and based on the studies other doctors have written on negative sweat tests and obvious cf cases... -
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Looking for a little advice on what my son could have? Negative sweat test.
Im not sure about the salty when I kiss him thing. I hate the taste of sweat do I've gotten into the habit of only kissing him on the nose or lips. I'm not sure why or when I started but I have no issues kissing on my other son so I'm not sure of my youngest is saltier and I've just reacted to... -
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Looking for a little advice on what my son could have? Negative sweat test.
Does salt intake affect the test? My son is currently on an organic, no gluten, no oat diet. I make a good chunk of his meals and I put salt in none of them or very little. I live close to Atlanta.. kinda. So I drove to their Childrens Healthcare hospital there. They are suppose to have a CF... -
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Looking for a little advice on what my son could have? Negative sweat test.
I am looking for a little advice or experience from others here because I have finally reached the point where I have no clue what is going on with my child. I thought I finally was about to get an answer in CF but the sweat test came back negative today and I have no other ideas on what to do...