Recent content by ldy
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L
Is there an easier way to give my toddler the salt he needs?
I would suggest Thermotabs. You can cut it up into small pieces if you need to. I would be very careful with Gatorade/ PowerAde drinks with certain flavors in the USA. There is an ingredient Called "Brominated Vegetable Oil (BVO)". There are many stories about BVO but as it relates to CF, it... -
L
Interpretation of Ataluren Press Release
"Ataluren wasnt desingned to slow down the damage on lungs, but to activate CFTR function." You are exactly on mark!It was thought that it would "correct the defect in X mutations" Patients on the trial have made comments about recent changesto the trial with regards to what inhaled medications...- ldy
- Post #11
- Forum: CFTR Modulation and Gene Therapy Talk
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L
Interpretation of Ataluren Press Release
I think that none of us can determine whether it will slow progression based on the information they provided in their press release. It's some of what they did not mention that bothers me the most. There was no mention of kidney issues (while not hospitalized). There was no mention that not all...- ldy
- Post #9
- Forum: CFTR Modulation and Gene Therapy Talk
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L
Vitamin D = IBS symptoms?
Vitamin D supplements are fat soluable. It might help if you take enzymes with any fat soluable vitamin. -
L
Vitamin D = IBS symptoms?
Vitamin D supplements are fat soluable. It might help if you take enzymes with any fat soluable vitamin.