Recent content by LisaV

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    Nonprofits run and operated by adult cystics

    I've heard so many adult cystics saying (basically) "nothing about us without us" . This phrase come out of the disability rights movement. (It's also the title of a famous excellent book by James I. Charlton ( <a target=_blank class=ftalternatingbarlinklarge...
  2. L

    Nonprofits run and operated by adult cystics

    I've heard so many adult cystics saying (basically) "nothing about us without us" . This phrase come out of the disability rights movement. (It's also the title of a famous excellent book by James I. Charlton ( <a target=_blank class=ftalternatingbarlinklarge...
  3. L

    Nonprofits run and operated by adult cystics

    I've heard so many adult cystics saying (basically) "nothing about us without us" . This phrase come out of the disability rights movement. (It's also the title of a famous excellent book by James I. Charlton ( <a target=_blank class=ftalternatingbarlinklarge...
  4. L

    Nonprofits run and operated by adult cystics

    I've heard so many adult cystics saying (basically) "nothing about us without us" . This phrase come out of the disability rights movement. (It's also the title of a famous excellent book by James I. Charlton ( <a target=_blank class=ftalternatingbarlinklarge...
  5. L

    Nonprofits run and operated by adult cystics

    I've heard so many adult cystics saying (basically) "nothing about us without us" . This phrase come out of the disability rights movement. (It's also the title of a famous excellent book by James I. Charlton ( <a target=_blank class=ftalternatingbarlinklarge...
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    New Category???

    See my post on my take on this in another thread <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=35187&enterthread=y&STARTPAGE=1#last">http://forums.cysticfibrosis.c...ead=y&STARTPAGE=1#last</a>
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    New Category???

    See my post on my take on this in another thread <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=35187&enterthread=y&STARTPAGE=1#last">http://forums.cysticfibrosis.c...ead=y&STARTPAGE=1#last</a>
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    New Category???

    See my post on my take on this in another thread <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=35187&enterthread=y&STARTPAGE=1#last">http://forums.cysticfibrosis.c...ead=y&STARTPAGE=1#last</a>
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    New Category???

    See my post on my take on this in another thread <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=35187&enterthread=y&STARTPAGE=1#last">http://forums.cysticfibrosis.c...ead=y&STARTPAGE=1#last</a>
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    New Category???

    See my post on my take on this in another thread <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=35187&enterthread=y&STARTPAGE=1#last">http://forums.cysticfibrosis.c...ead=y&STARTPAGE=1#last</a>
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    Questions about adult diagnosis

    You should also be tested for alpha-1 anti-trypsin deficiency (see <a target=_blank class=ftalternatingbarlinklarge href="http://www.alphaone.org/">http://www.alphaone.org/</a> ). It is recommended that anyone who has emphysema, chronic obstructive pulmonary disease (COPD), chronic bronchitis or...
  12. L

    Questions about adult diagnosis

    You should also be tested for alpha-1 anti-trypsin deficiency (see <a target=_blank class=ftalternatingbarlinklarge href="http://www.alphaone.org/">http://www.alphaone.org/</a> ). It is recommended that anyone who has emphysema, chronic obstructive pulmonary disease (COPD), chronic bronchitis or...
  13. L

    Questions about adult diagnosis

    You should also be tested for alpha-1 anti-trypsin deficiency (see <a target=_blank class=ftalternatingbarlinklarge href="http://www.alphaone.org/">http://www.alphaone.org/</a> ). It is recommended that anyone who has emphysema, chronic obstructive pulmonary disease (COPD), chronic bronchitis or...
  14. L

    Questions about adult diagnosis

    You should also be tested for alpha-1 anti-trypsin deficiency (see <a target=_blank class=ftalternatingbarlinklarge href="http://www.alphaone.org/">http://www.alphaone.org/</a> ). It is recommended that anyone who has emphysema, chronic obstructive pulmonary disease (COPD), chronic bronchitis or...
  15. L

    Questions about adult diagnosis

    You should also be tested for alpha-1 anti-trypsin deficiency (see <a target=_blank class=ftalternatingbarlinklarge href="http://www.alphaone.org/">http://www.alphaone.org/</a> ). It is recommended that anyone who has emphysema, chronic obstructive pulmonary disease (COPD), chronic bronchitis...
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