Recent content by lsveburg

  1. L

    anxious about not feeling good despite good numbers?

    Jenna is slowly regaining. Thank you for asking. I hope you find the answer, I dislike the feeling of not knowing.
  2. L

    anxious about not feeling good despite good numbers?

    Maybe you are anemic. Your sats can look great but if you're anemic then the capacity for oxygen carrying is lower. The Dr. at children's told us he would rather have a 92 sat with at 12 Hgb than a 98 sat with an 8 Hgb. All the residents kept wanting to remove Jenna's O2 but she had dropped her...
  3. L

    26, just diagnosed, advice/input/kind words welcome.

    Mike, may I ask if any of your tests indicated hepatosplenomegaly? We are only beginning the journey of cf but my son who is 21 has similar symptoms as you and his abdominal ct showed the enlargement of liver and spleen along with sludge in his gall bladder. Everyone I talk to can't believe cf...
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