Recent content by MJS

Ironic isnt it. President Bush wants to give incentives for people to get married to reestablish the "moral" level that we lost yet this is an example of where incentives should go. Unlike Medicare/SSD which is based on your work history, Medicaid/SSI is more income/asset based. Thus when you...

As a 35 year old, stay at home Mom with CF, I am disgusted with what this doctor has presented to you. He should lose his license. First of all the info is incorrect. Secondly even if your children would get the actual disease, it is not his place to present this info/opinion in the fashion he...

I became the sickest in my life in 1/2000. I went to work that morning (I worked at our local hospital), ended up in the emergency room & didnt return home from the hospital (was transferred to my CF doctor 3 hours away) for 1 month & never returned to work. My PFT & weight were life...

I became the sickest in my life in 1/2000. I went to work that morning (I worked at our local hospital), ended up in the emergency room & didnt return home from the hospital (was transferred to my CF doctor 3 hours away) for 1 month & never returned to work. My PFT & weight were life...

This information was in my local paper a few weeks back. It was regarding hot tubs, but I am sure much of it applies to swimming pools. It seems that hot tubs (more home used than commercial as in hotels) are causing severe respiratory problems. Most of the statistics show that it takes place...

You can hose it down. Depending on what exactly you want as a result. If it is to kill some germs, try an anti-bacterial soap & use a scrub brush. Otherwise regular laundry detergent. If its the material I am thinking of, you shouldnt need a lot of soap. Just scrub good & rinse very well. Let...

Unfortunately it still can be. I was diagnosed with CF at 7 years old after many, many difficult years of chronic diahrea, cramps etc. I was tested for all allergies that tests were available for then. At that time I had no respiratory involvement except a bout of bronchitis when I was 2 years...

Any age is difficult when dealing with being "different" in the eyes of others. I dont have much advice except for a line from the movie "Forrest Gump". Right after Forrest got braces on his legs, he got his foot stuck while walking through town with his Mom. After a very attention getting...

I have been going to the same CF group since my dx at 7 years old. The difference is that one doctor specializes in adults & the other pediatrics. They still cover for each other on days off etc, but the knowledge is equivilant & both are open minded & concerned about the patients opinions as is...

No one wants to think about this type of topic. Many people avoid the subject at all expense. Unfortunetly its a part of life. With us its an avid part that always hangs there waiting. My Mom had a baby die at 2 months (long before I was thought of & not from CF) & my sisters oldest son was...

When I was growing up, we owned a lakehouse. My way of waking up was to go out & jump in the lake. I have no doubt there is bacteria there. Bacteria lives all around the world. I also know that it depends on how the water source is maintained. Our lake was very "clean". No gas powered motor...

Thank you, but I am quite aware of this information. In my posting, I stated that my daughter was CF free & my husband is not a carrier. I said that since there are the chances of NOT having a CF child even with both parents being carriers. I also noted that we didnt want to push our luck. I...

You had a double whammy with yourself of which both would be given to your baby plus the baby's dad that died from an overdose. Even if his Dad didnt overdose, the affects of drugging before/while you got pregnant can affect the baby. You believe God meant for you to have this baby. Maybe he...

Why? Good Question. We have now entered the zone of OVERcensorchip.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

FYI....A while back there was a wife who posted. Her "elderly" husband had just been diagnosed with CF. He had a history of asmtha, pneumonia etc, but nothing severe. It wasnt until their GRANDSON was diagnosed that they even thought or knew to test him. Granted it is rare for males with CF to...