Recent content by purple4cf
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Have I asked too much of my children's elementary school teachers, and nurse?
Thanks! With my husband deployed, it is extremely hard making decisions alone and decyfering what is ok, what I can let slide and what is just wrong! Not that Im an idiot, but with so many things going on its hard to question the school that does so well/or horrible with my daughter. Our... -
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How long did it take to get approved for the vest?
It took us one week to the day! -
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Have I asked too much of my children's elementary school teachers, and nurse?
My daughter, 5,started kindergarten this past August. Our pulmonary nurse and nutritionist were very active in her IEP meetings. We had two at the request of the school. One at the beginning of the summer and one a few days before school started. They (the school) wanted to include her... -
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CF clinic recommendations near Auburn, AL
We are from Northeast Alabama and travel to Birmingham for Clinic and hospital stays. Dr. Hoover is #1! Ask for him! All of the pulmonary team is! Our daughter was diagnosed at 4 months old and has seen them from day one! She was very sick and her left lung was filled with excess mucous... -
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Hermit Crab
My husband and I have had one or more saltwater fish and or marine coral tanks in our home since before our daughter with CF was born. We have never had a problem with chest infections or any other CF exasterbations. She has been hospitalized only 4 times in her life. Most were for CF... -
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Hermit Crab
My husband and I have had one or more saltwater fish and or marine coral tanks in our home since before our daughter with CF was born. We have never had a problem with chest infections or any other CF exasterbations. She has been hospitalized only 4 times in her life. Most were for CF...