Recent content by QTPie

  1. Q

    What things did CF Center tell you to do/not do re avoiding infections

    you may find these handouts from CF Foundation useful. They are based on the most recent guidelines for infection prevention & control: http://www.cff.org/LivingWithCF/InfectionPreventionControl/TipSheets/
  2. Q

    Need to learn more about End Stage CF (Supporting a Friend)

    2 suggestions where you may find helpful information: 1) CF Foundation's site - on what to expect w/re to the process of transplant : http://www.cff.org/treatments/LungTransplantation 2) CF Roundtable - newsletter published by adults with CF : http://www.cfroundtable.com/?s=transplant
  3. Q

    Keeping healthy when out and about

    Based on quick google results, there is no evidence that supports any of the claims this product is making. i would be weary of such products and keep up vigilance around basic, common sense infection control practices: * Wash your hands (or wear gloves) * Try not to touch your face * Cover...
  4. Q

    CF Facts and the importance of TIME

    Is there a recording or pdf of the Time presentation in Philadelphia?
  5. Q

    An Overstock of Extra Enzymes

    Yes, please talk to your care center since i'm sure they know of folks who could use them. That'll also provide some peace of mind knowing you're not unintentionally doing harm since you've checked with the medical folks who can exercise their professional judgement in determining who these...
  6. Q

    Just wondering about Pseudomonas..

    Please take the full dose of antibiotics. Not doing contributes to greater antibiotic resistance, which makes the bugs a lot harder to treat down the road - for both your son and the rest of us. I would also ask your care team specifically about opportunistic bacteria - and whether Pseudomonas...
  7. Q

    Nebulizer Maintenance in College Dorms

    There are some helpful tips on ways to take care of your nebulizer on the CFF's site: http://www.cff.org/LivingWithCF/InfectionPreventionControl/TipSheets/GuardAgainstGermsEveryday/#Clean-and-Disinfect-Nebulizer
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