Recent content by RachelLynne

  1. R

    Want to donate VEST

    This is just some advice for you...When I was 12 I went through the exact same thing As you.Dr said I was healthy and stopped my treatments.At the time, my family was in the process of paying off my vest after the insurance paid for half of it.Well we stopped paying and turned my vest in,and now...
  2. R

    What kind of school do/did you go to?

    It depends on your school district. For us, I made it until 9th grade in a public school system. The schools fought with us constantly about me missing school, didn't have any smpathy dealing with illnesses with the children, etc. Your best bet is to find mothers in your school district and talk...
  3. R

    What kind of school do/did you go to?

    It depends on your school district. For us, I made it until 9th grade in a public school system. The schools fought with us constantly about me missing school, didn't have any smpathy dealing with illnesses with the children, etc. Your best bet is to find mothers in your school district and talk...
  4. R

    Could we be on the road to CF?

    Hello, I'm sure this is tough for you, as it would be for anyone going through this. I don't have much advice except for get the tests done just to rule it out. I was misdiagnosed all of my life from asthma,to brochiectasis and so on. It's better to get the test done if you have any kind of...
  5. R

    Could we be on the road to CF?

    Hello, I'm sure this is tough for you, as it would be for anyone going through this. I don't have much advice except for get the tests done just to rule it out. I was misdiagnosed all of my life from asthma,to brochiectasis and so on. It's better to get the test done if you have any kind of...
  6. R

    Diagnosed as an adult

    Hi! I know how this must feel.I'm young myself,only 19.But all of my life I have been told I have Bronchiectasis and followed CF treatments. When I was about 12,I had my port removed and the doctors basically said I'm better...Sounded like a miracle,but my parents believed them so I came off of...
  7. R

    Diagnosed as an adult

    Hi! I know how this must feel.I'm young myself,only 19.But all of my life I have been told I have Bronchiectasis and followed CF treatments. When I was about 12,I had my port removed and the doctors basically said I'm better...Sounded like a miracle,but my parents believed them so I came off of...
  8. R

    First meeting with Nutritionist

    Hello All,<br>I just got the pleasure of meeting with anutritionist for the first time,but I had a tough time. I have major digestive issues,like using the bathroom 2ce a month issues,but my doctor has been against putting me on enzymes. She instead changed my diets to foods that are easier to...
  9. R

    First meeting with Nutritionist

    Hello All,<br>I just got the pleasure of meeting with anutritionist for the first time,but I had a tough time. I have major digestive issues,like using the bathroom 2ce a month issues,but my doctor has been against putting me on enzymes. She instead changed my diets to foods that are easier to...
  10. R

    Looking for some cystic fibosis friends

    Hello! You're welcome to add me.http://www.facebook.com/profile.php?id=100001639007254
  11. R

    Looking for some cystic fibosis friends

    Hello! You're welcome to add me.http://www.facebook.com/profile.php?id=100001639007254
See more
Top