Recent content by stillkickin

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    Pancreatitis and The Vest

    Well, I don't know if the Vest irritates the Pancreatitis. I do know when I get hand percussion...I can't go anywhere near the mid and lower left side because it hurts when I've had Pancreatitis. When the pancreas is literally trying to digest itself, it stands to reason anything moving it...
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    Pancreatitis and The Vest

    Well, I don't know if the Vest irritates the Pancreatitis. I do know when I get hand percussion...I can't go anywhere near the mid and lower left side because it hurts when I've had Pancreatitis. When the pancreas is literally trying to digest itself, it stands to reason anything moving it...
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    My 1 Year Post Transplant Video!!

    This is an AWESOME video Charle! Happy 1 Year Anniversay!!! Keep on truckin' on your bike and breathing easy! You gave me hope...something I needed badly today <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks...Anne
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    SSI and Special Needs Trust

    Oops! Her email address is: bsufian@usacfa.org
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    SSI and Special Needs Trust

    Oops! Her email address is: bsufian@usacfa.org
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    SSI and Special Needs Trust

    You can write to Beth Sufian. She is an attorney who writes articles for CF Roundtable...cfroundtable.com. You can see a sample of her topics there. She deals with CF related issues with SSDI, SSI, etc. She's a kind and bright lady...who I believe has CF...so she's been around the block and...
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    SSI and Special Needs Trust

    You can write to Beth Sufian. She is an attorney who writes articles for CF Roundtable...cfroundtable.com. You can see a sample of her topics there. She deals with CF related issues with SSDI, SSI, etc. She's a kind and bright lady...who I believe has CF...so she's been around the block and...
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    Do you ever feel inadequate?

    Hi Sheli...I'm a 41 year old CF patient without kids, so I can't relate to how helpless CF feels from a parent's point of view. I can say I wouldn't still be here today without my Mom being the strong woman that she is. I'm sorry you have 2 boys with CF and are struggling. I understand that...
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    Do you ever feel inadequate?

    Hi Sheli...I'm a 41 year old CF patient without kids, so I can't relate to how helpless CF feels from a parent's point of view. I can say I wouldn't still be here today without my Mom being the strong woman that she is. I'm sorry you have 2 boys with CF and are struggling. I understand that...
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    Just for fun but CF related - Real things doctors have said to me in the hospital

    I had a lung collapse and was taken to the local hospital. Not my choice...but ambulance didn't want to take me 40 miles to my CF Center. Anyway, the Attending came in and said..."So you have CF." I said..."Ya." She said..."When did you catch it?" I tried to save face for her and...
  11. S

    Just for fun but CF related - Real things doctors have said to me in the hospital

    I had a lung collapse and was taken to the local hospital. Not my choice...but ambulance didn't want to take me 40 miles to my CF Center. Anyway, the Attending came in and said..."So you have CF." I said..."Ya." She said..."When did you catch it?" I tried to save face for her and...
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    nervous about my health

    I'm on the Transplant List and my FEV1 is 12%. I got listed in November 2011 once I required oxygen 24/7 and my PFT's started dropping regardless of medicine. Everyone is so different. When my FEV1 was 20%, I didn't require oxgen...took it slow and was still was going to grocery store, etc. A...
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    nervous about my health

    I'm on the Transplant List and my FEV1 is 12%. I got listed in November 2011 once I required oxygen 24/7 and my PFT's started dropping regardless of medicine. Everyone is so different. When my FEV1 was 20%, I didn't require oxgen...took it slow and was still was going to grocery store, etc. A...
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    Pneumothorax (Collapsed lung)- whos had one?

    First off...I fully believe they're different for everyone. After my first collapse, I definetly lost lung function...but was still functional in life. That was a quiet before the recent storm. First lung collapse was June of 2008. I spent the next couple of years sort of fearful of when it...
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    Pneumothorax (Collapsed lung)- whos had one?

    First off...I fully believe they're different for everyone. After my first collapse, I definetly lost lung function...but was still functional in life. That was a quiet before the recent storm. First lung collapse was June of 2008. I spent the next couple of years sort of fearful of when it...
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