Recent content by swatterson

Zoe had a stress test and we are waiting on the results. What I do know is that her pulse ox didn't change, and her lung function (PFT) improved a little but basically didn't change. What we did notice is a 180-190 heart rate. Waiting on the cardiologist interpretation...will keep you posted.

Update Hello everyone. First I want to thank everyone for sharing your opinions, concerns and support. I appreciate it and we had a CF MD appt 3 days after the post so I had the opportunity to share some of your thoughts and opinion. BTW - are there really people out there that don't have a...

This is a good thought for me to consider! She practices - 3 x per week, about 2 hrs a practice but there is a lot of down time and only walking through the routine, not "full out." Maybe 3-5 times a practice they may go full out but they don't expect her to if she is having difficulty...

Bill - pretty out of date opinion. You obviously didn't read the entire post. Also, her pulmonologist - one of the most well known in the country...considers exersice part of her lung therapy and is concerned when she is not competitively cheerleading.

thanks Chris - I see her pulmonologist on Wednesday and will add this to the discussion!

My 16 year old is a competitive cheerleader - deltaF508. 50% lung function baseline. she does hypertonic saline (not consistently), vests 2x per day, ventolin inhaler, advair, singular, pulmozyme..... She is a flyer, stunts, jump, center pyamid, and dance - they have cut her out of some of the...

We have been very fortunate with sports.  We had a 504 (civil rights apply and yes it does cover this situation).  My daughter (homozygous Delta508, CFRD, 50 FEV) is 15, a competitive cheerleader/flyer on an elite team as well as in high school. Her coaches know and fortunately are accomodating...

We have been very fortunate with sports. We had a 504 (civil rights apply and yes it does cover this situation). My daughter (homozygous Delta508, CFRD, 50 FEV) is 15, a competitive cheerleader/flyer on an elite team as well as in high school. Her coaches know and fortunately are accomodating...

We have been very fortunate with sports. We had a 504 (civil rights apply and yes it does cover this situation). My daughter (homozygous Delta508, CFRD, 50 FEV) is 15, a competitive cheerleader/flyer on an elite team as well as in high school. Her coaches know and fortunately are accomodating...

it's your right to pull you child from a clinical trial at anytime for any reason, but follow Dr. orders regarding stopping immediately or gradually as I don't know what denufosol is or the side affects. At the last hospital stay my child (14 y girl) tried the saline and like the results.

it's your right to pull you child from a clinical trial at anytime for any reason, but follow Dr. orders regarding stopping immediately or gradually as I don't know what denufosol is or the side affects. At the last hospital stay my child (14 y girl) tried the saline and like the results.

it's your right to pull you child from a clinical trial at anytime for any reason, but follow Dr. orders regarding stopping immediately or gradually as I don't know what denufosol is or the side affects. <br /> <br />At the last hospital stay my child (14 y girl) tried the saline and like the...

it's your right to pull you child from a clinical trial at anytime for any reason, but follow Dr. orders regarding stopping immediately or gradually as I don't know what denufosol is or the side affects. At the last hospital stay my child (14 y girl) tried the saline and like the results.

it's your right to pull you child from a clinical trial at anytime for any reason, but follow Dr. orders regarding stopping immediately or gradually as I don't know what denufosol is or the side affects. At the last hospital stay my child (14 y girl) tried the saline and like the results.

it's your right to pull you child from a clinical trial at anytime for any reason, but follow Dr. orders regarding stopping immediately or gradually as I don't know what denufosol is or the side affects. <br /> <br />At the last hospital stay my child (14 y girl) tried the saline and like the...