Recent content by toria

Best suggestion is LESS STUFF. Be a minimalist. Go to the library and borrow books, go to the park, children wear pants for a few days,. Keep it simple. They really don't need as much as we buy them. Save money, your sanity, and the Earth.

I've done IVF three times, two healthy pregnancies. First IVF didn't work. Both pregnancies twins, but lost a twin with each pregnancy. I have two wonderful boys, 16 and 10. IVF wasn't difficult, but the pregnancies were and the birth. IVF in general is well difficult emotionally, physically...

I never was able to. If he is employed through a large agency, then during his initial first weeks if he signs up typically there is no medical questions for $50K. Then when they offer increasing with no medical questions he can continue to increase it. I work for a school district.

A mother's intuition is almost always correct. I'd push for a genetic test. Yes, it matters as the sooner you can treat , the less lung damage there will be.

I sent you a private message. There is such hope with a child born with this mutation. Advances I never thought would happen in my lifetime. Kalydeco is FDA approved for this mutation. Now to get insurance approval and keep your son healthy until he is old enough to take it. You may not feel...

I'm a teacher with CF. I grew up without 504s and IEP meetings.My mother talked to the teacher and she taught me how to take care of myself. She was a stay at home mom and my lunch was filled with nutritious high calorie foods I would eat. I was sick frequently and missed school. I was given...

Don't be nice about it. Tell him what this is doing to you. He loves you probably more than he loves himself right now.

Odd that today I read this post. My brother died 15 years ago today. There are so many emotions. For the rest of the family they lost a love one and they grieve. For me so much more. He was the pioneer who made the trail. The one who gave me advice on what to do and what not to do. My brother...

I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...

I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...

I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...

I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...

I am so glad you feel that way about IVF/pgd. I get so frustrated reading about those who don't believe it is a big deal to have another child blindly when the first has CF. My family has 4 children 3 with CF. My brother was 15 before they finally figured out what was wrong with him and...

I am terrified of getting cepacia. My brother had it and I watched him get sicker and sicker, so I can understand your fear. I did read on the Boomer Eaison website about new therapy using oils to combat these drug resistant bacteria. Hopefully they will find something that treats it and soon.

I am terrified of getting cepacia. My brother had it and I watched him get sicker and sicker, so I can understand your fear. I did read on the Boomer Eaison website about new therapy using oils to combat these drug resistant bacteria. Hopefully they will find something that treats it and soon.