Recent content by tumbleon
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If you don't have a gating mutation and want Kalydeco....
I have read a lot of talk about trying to get Kalydeco if you do not have the G551D mutation. I have not seen or heard a lot if any responses or results of people who actually have tried it? Can those people who do not have G551D and have gone on Kalydeco tell us if they have seen any...- tumbleon
- Post #3
- Forum: CFTR Modulation and Gene Therapy Talk
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If you don't have a gating mutation and want Kalydeco....
I have read a lot of talk about trying to get Kalydeco if you do not have the G551D mutation. I have not seen or heard a lot if any responses or results of people who actually have tried it? Can those people who do not have G551D and have gone on Kalydeco tell us if they have seen any...- tumbleon
- Post #4
- Forum: CFTR Modulation and Gene Therapy Talk
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T
Wife not responding to IV's like normal, First Bronchoscopy
Hello, My wife is 31 with CF D508 I believe. We have a beautiful 5 year old daughter. We have been together for almost 10 years and married for almost 7. My wife was diagnosed with CF when she was 18 months I believe. She has always taken very good care of herself and mostly just has lung issues... -
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Wife not responding to IV's like normal, First Bronchoscopy
Hello, My wife is 31 with CF D508 I believe. We have a beautiful 5 year old daughter. We have been together for almost 10 years and married for almost 7. My wife was diagnosed with CF when she was 18 months I believe. She has always taken very good care of herself and mostly just has lung issues...