Recent content by valshingle

  1. V

    Recommendations for travel bag for nebs/meds/ compressor

    My daughter, 22, uses a Vera Bradley bag. It even has a way to slide over the handle of her rolling vest. Stylish and useful!
  2. V

    When did orals stop working for you

    For my DD it just occurred at age 21 when her bugs (SA and PA) became resistant to the oral antibiotics. However, she does have chronic sinus issues and does occasionally use oral antibiotics for that.
  3. V

    Side effects from Cipro

    My daughter has reactions to Cipro, but not to Levaquin. I'd ask your doc if you could try Levaquin.
  4. V

    Best Site For A Port?

    My daughter is about to age out of her current CF hospital. She does not have a port at this time. They are predicting that she has about 2+ years before she will need a port. She is interested in getting her port in her upper arm when the time comes. Currently the only Surgeon we know who does...
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    VRE

    We go to Cook Children's in Fort Worth. My daughter sees an adult CF doc while at college in Houston, TX. I'm trying to reach them now to see what they recommend. I will let you know what they suggest. Thanks for responding!
  6. V

    VRE

    We go to Cook Children's in Fort Worth. My daughter sees an adult CF doc while at college in Houston, TX. I'm trying to reach them now to see what they recommend. I will let you know what they suggest. Thanks for responding!
  7. V

    Bloodsugar got to 347 tonight

    We call prednisone the hungry **tch pill. Sorry to hear that you have to be on it.
  8. V

    Bloodsugar got to 347 tonight

    We call prednisone the hungry **tch pill. Sorry to hear that you have to be on it.
  9. V

    VRE

    My 20 yr old daughter cultured VRE (vancomycin resistant enterococci) from her last sinus surgery. She has not had any vancomycin given to her. The clinic and ID docs are not concerned and do not recommend any treatment. They are not concerned about her transmitting it to a non-CFer. She will be...
  10. V

    VRE

    My 20 yr old daughter cultured VRE (vancomycin resistant enterococci) from her last sinus surgery. She has not had any vancomycin given to her. The clinic and ID docs are not concerned and do not recommend any treatment. They are not concerned about her transmitting it to a non-CFer. She will be...
  11. V

    Mom irritated with clinic

    Are you both in the US? Are you going to a designated CF center? I was at a seminar (given by two CF centers) this past weekend and they said for accurate sweat test interpretations and CF diagnosis that patients should be going to/evaluated by a CF center. There are currently >1600 CF...
  12. V

    Mom irritated with clinic

    Are you both in the US? Are you going to a designated CF center? I was at a seminar (given by two CF centers) this past weekend and they said for accurate sweat test interpretations and CF diagnosis that patients should be going to/evaluated by a CF center. There are currently >1600 CF...
  13. V

    Mom irritated with clinic

    Are you both in the US? Are you going to a designated CF center? I was at a seminar (given by two CF centers) this past weekend and they said for accurate sweat test interpretations and CF diagnosis that patients should be going to/evaluated by a CF center. <br /> <br />There are currently...
  14. V

    Problem with Ask Steve of Ambry Thread

    Thanks. The problem is I asked the doctor about my daughter's mutation and now can't read if he replied. No urgency, but it would be nice to find out.
  15. V

    Problem with Ask Steve of Ambry Thread

    Thanks. The problem is I asked the doctor about my daughter's mutation and now can't read if he replied. No urgency, but it would be nice to find out.
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