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Hi, I have been flying long distances (more than 10 hours) for many years and never had any problems during or after the flight. However, in my last flight, which was only a 3 hours, I measured my O2 for the 1st time - with an oximeter - and was shocked - my O2 levels dropped to the 70%s! Is...

I had my first attempt at using oxygen at night last night. I was relaxed and (finally) accepting the situation so I thought it was going to go relatively smoothly. It didn't. I tossed and turned for 2,5 hours in bed and couldn't fall asleep. It felt uncomfortable, unnatural and the wind in my...

Dear all, I've recently learned that I'm going to start on night oxygen. I am completely devastated about this, with ups and downs but more downs for the time being. I am also in shock because I sleep so well, I have no headches and I feel rested, energetic and active during the day. So nothing...

Hello, I'm in the hospital for a sleep study and my o2 sat has just been measured and it's 92-93% while awake. I'm devastated, as now I'm sure that it's too low and it will lower in my sleep. Now I have a few questions: 1- will I necessarily need oxygen when flying, if I need it at night? 2-...

Hi, I have a very deviated septum and I've been wondering if getting this fixed could potentially improve my breathing? I'm sure there are lots of healthy people with deviated setpums who don't really notice it, but I'm thinking that for CF patients it could offer some much needed relief. Any...

Hi, The vest isn't covered by health insurance packages here in Holland and doctors don't even talk about it because it would be too expensive for patients to get it out of their own pockets. My doctors tell me that it's not covered because there is no real scientific proof that the vest...

Hi, I was recently informed that I'm going to do the sleep study soon. I am so terrified of the possibility that I'll have to start using night oxygen in the near future as I truly feel am I not mentally ready to come to terms with that (who is though?) Also I am very surprised that this came...

Hi, I caught a cold (no fever) and am coughing way way more. I started taking oral antibiotics last Thurday and have been staying at home to rest and keep warm. Can I still work out though? I have one of those gym bikes which is what I mostly use to exercise, so I wouldn't have to leave the...

Hi, I've always been curious about this...Mine are as follows: - FEV1 - 35% (for the last 10 years) - Vital Capacity - 2 liters - I feel tired quickly during physical activity, but I can lead a reasonably normal life: work 24h a week (I'm a soft-skills trainer), can go out, go shopping, go for...

Hi, I'm 28 and my FEV1 has been 35% for about 10 years. I can do a lot with it (work, lead an active life, etc) but of course am always afraid of it decreasing since it's already so low. (I do get tired a lot obviously). For this reason, I have always thought I had a 35% lung capacity. However...

Hi guys, I've recently been accused of not really caring about much that goes on in the world, like wars, current events, conflicts, financial crisis, etc. I've pondered about this and I did come to the conclusion that even though I read a lot and like to know what's going on, I find that I...

<P>Hi,</P> <P> </P> <P>Has anyone ever tried Hyperbaric Oxygen Therapy? If so, what were the results?</P> <P> </P> <P>Thanks,</P> <P> </P> <P>Vera</P>

Yeah, so I already knew that Chopin, one of my favorite classical composers, suffered from CF, or so state the speculations. Apparently he was this little pissy thing who was always coughing as he went through his wonderful compositions and getting angry at everyone. I have to say this makes me...

Hi, I am a 27 year old female with CF. I was diagnosed at 15 and I've grown to become a cold person, for the most part, not really able to like other people because I cannot relate to them at the core (because they don't suffer from a terrible illness). I can be friendly, extroverted and...

Hello all. I'll be direct: any chance of having kids with a lung function of around 40%? I know a doctor's opinion is what counts here but i just need to know if you have ever heard of this. Thanks.

I had a check up today and had an x-ray taken to my lungs. The doctor was very surpised as the improvement is huge, he said. An x-ray taken last year showed lots of inflamation that has since disappeared. He said this is rare. Have you had this happent to you or is it, in fact, unusual? Thanks...

Hello. I know it can vary but how long do transplant patients have to be transplanted again (or for the lung to be "saved") in case of lung rejection after a transplant? Thanks.

Hi all. I've just read on a website that some people who suffer from CF have some difficulty sleeping due to pain. I know that some CFers suffer from joint pain but have never really understood why. Other than this type of pain, what other situations can induce pain in CFers (other than...

Hello, What steps do you take when you get a cold? Do you take (oral) antibiotics straight away to avoid an escalation to something worse or do you do the simple things healthy people do, like taking aspirin, vitamins and rest? Thanks, Vera

I always feel SO guilty everytime i am around a smoker. Even if it's only 1 person and we're outdoors. I get totally paranoid and feel so guilty for it. I spend my time avoiding 2nd hand smoke to a point where, in the wintertime, I dont even go to any house parties, so i end up becoming totally...