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Hello everybody. For those who don't know me i am Vera and am 25. I live in Holland. I got a pneumonia last month, waited too long to go to the doctor (basically i was really ill, short of breath for the first time and with fevers that reached 104 F for 2 weeks, without doing anything about it!)...

Hello. Everytime i drink and get drunk, i always feel totally at my best the following day, regarding tiredness and cough. It's not just a coincidence, it's really everytime i get drunk during the night, the following day is always perfect. I don't cough even once, not even a slight cough, i...

<i>Hello all, I am 25 and was diagnosed at the age of 15. I have a few questions that i would like to ask. It's just a little confusing in my head, still, how this whole thing works, so here it goes: - Is it possible that the medicines we take can actually improve the condition of our lungs? I...

Hello, I woke up yesterday with a strong pain that went from my shoulder all the way down to the bottom of my left lung. I have cf and my condition is mild. I lead a normal life and never needed admission in the hospital. Nevertheless i am obviously considering that this could be a collapsed...

Hi people. I was wondering if you guys work and what do you do (if you don´t mind me asking). I am 24 and never had an interest (so far anyway) in going to university and taking a degree because i always thought my life would be short and going to university would be a waste of time (when i was...

Hey, im a portuguese girl who's moving (temporarily) to New Zealand. I plan to stay there for about 3 months . I don't plan to go to appointments there or anything because i will try to take all the medication i need , from Portugal . So i was just wondering, out of curiosity , how do New...

Hello everyone! When i go to my appointments my doctor always asks me, as one of the many routine questions, if i have a swollen belly or have had over the last months, my answer has always been no. But for these last 2 weeks, aproximately, my belly has been very swollen! Especially after...

Hi. Here's something i have never remembered to ask my doctors: can our lungs get better? Don't be afraid to answer negativelly because my guess is "no", according to what's logical. I know we go through phases when we feel bad but then we feel good again, that's a fact. But the organs...

Hey everyone.. As the title says, i have always been obsessed with my illness, it seems like there isn't one day that goes by when i'm not thinking obsessively about it, i can't seem to make it go away, as a consequence of focusing so much on my breathes etc, i sometimes feel i can barely...

Ok, which one of these is the most correct, i'm confused here: - When your lungs are badly affected, most likely your pancreatic situation will be better; or - The more affected your pancreas is, the better your lungs are. Meaning, is the amount of mucus that is distributed throughout the...

My mutations are: N 1303K and R 334W... i just found out recently. Does anyone know what kind they are, ever heard of them? Common, not common? Thanks.

Just wondering, just recently i was told seriously by my doctors that there are great chances of transmiting bugs between cf patients who have different ones. It's a shame because sometimes we meet someone and we'd like to hang out with them and if they have cf that chance is normally ruined. Is...

Hi. Im portuguese and planning on moving to The Netherlands, more specifically Amsterdam, next year. I need info about how it works there with cf patients,don't know anything yet. Any help would be much appreciated. Also, you can contact me by email at veramolko@hotmail.com . Thanks. Vera

Why does everyone say "You are so strong!! I don't think i would be able to live with an ilness like that. You're really strong" !!!! I hate that more than anything. Where do they see this strenght if i feel like dying everyday!! If i hate life because of this stupid curse and will never have a...

If any of you uses Hi5 dont hesitate to add me as a friend, look up the email veramolko@hotmail.com .. thanks

If any of you uses Hi5 dont hesitate to add me as a friend, look up the email veramolko@hotmail.com .. thanks

Hey. My doctors told me that it was the celts who first had cf and they were light skinned, had normally blue eyes and their hair also had a light colour. They also said that most people with cf look like that too. I, myself, was born into a family of brunettes, all have dark eyes and hair; i...

http://cf-talk.invisionzone.com/ Very nice forum, have a look for yourselves.

Hi. I was wondering if you could help by providing some advice and opinions. Im not on enzymes for ages (a couple of years) since the blood/feces results accused that i didn't need them. I actually think i don't for a few reasons (I don't feel bad at all without them,my feces are normal and once...

Hello all. Just out of curiosity, do you guys excercise a lot just with the aim of improving your health? My question comes from the fact that i , basically, just get up in the morning, do my treatment sitting down at the computer, relaxed.. Then for most times i dont do anything else all day...