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I just got home from the hospital and while I was in my mouth would get horrible dry (cotton mouth). I was on 3 different IV drugs (Tobra and 2 others) and 2 inhaled meds (xopenex and hypertonic). I am home and had my last treatments a few hours ago. My mouth is like the sahara desert. Is...

I am going in tomorrow afternoon for 10 days of IV drugs and sinus surgery on Jan 24. Kinda freaked out.... haven't had surgery in years and I feel like a big baby with all of my fears. Hoping they can deal with the infection in my nose...it is icky. My parents are out here taking care of...

I am having surgery on Monday (sinuses). They have scheduled my surgery for 7:30am (in pre-op by 6). I have CFRD-- and lots of low blood sugar issues. I am a bit freaked that my sugars will plummet on the morning of the surgery (stress causes my sugars to fall very quickly and I will be super...

I am waiting for a bed at the local hospital. Going to do approx. 1 week tune up and then sinus surgery on the 24th. My bags are packed... except for the last minute stuff. House is cleaned and I am just waiting. I imagine the respiratory wing is pretty busy this time of year. How long do...

I am going in tomorrow to get evaluated for sinus surgery. My CF doctor said that she will likely recommend a week of IV drugs before the surgery. I have had 3 other sinus surgeries (over 16 years ago) and only once did I do IV drugs first. Is this fairly typical?? Are they just trying...

I just got my notes from the ENT doc from my appointment earlier in the month. What the doctor says unnerves me. He says that the anatomy of my sinuses are quite distorted with significant post-operative changes (I have had 3 polyp removal surgeries). He says he could not identify any normal...

I got an email from my nurse yesterday and she said I have elevated IGE levels. I googled it and still unsure. They are going to test my levels again next month (actually in a couple of weeks). What causes high levels of IGE?? I have been feeling kinda icky for the past month or so. At...

I am on Augmentin antibiotic (day 6 or 7-- kinda lost track). For the past 2 days I have had bowel issues. I pass gas and have to run to the bathroom for fear of making a mess. I am concerned about getting dehydrated due to the diarrhea. My sugars have been a bit crazy today due to the...

I posted a few days ago that I was having weird symptoms after starting all of my new medications(antibitoic and sinus wash). Come to find out I am allergic to the sinus wash-- Budesonide. Horrible, Horrible!! Anyone else allergic to this drug??

I am being tested for fast pulse. The last two clinic appointments they have found my heart racing. I had an EKG and they only confirmed my racing heart. They want to do an ultrasound of my heart now. Anyone else with CF have a heart problem/condition?? If so what caused it (if I may ask)??

I have been horribly short of breath the past few weeks. I get up and do laundry to clean the kitchen and I get tired very quickly and short of breath. Sometimes I just have to stop and take a few deep breaths so that I can keep on. I carried laundry down two short flights of stairs and...

Tomorrow I am seeing a speech therapist for my vocal cord dysfunction. What can I expect at my appointment?? Anything invasive?? Just trying to get my brain wrapped around this. Anyone else have a vocal cord dysfunction?? How successful was speech in helping you get it under control...

I hope everyone has a wonderful and peaceful Thanksgiving. --I am thankful for a year of fairly good health. I am thankful for new health insurance. I am thankful for my son who gives me lots of hugs. What are you thankful for??

I have been feeling very overwhelmed lately keeping up with treatments, my housework and everything else. I don't work outside the home. We don't have family near us to give me a break (they live 8-12 hours away). I feel like I am busy from the time I get up till the time until I fall into...

I went to whistle at my hubby tonight <img src="i/expressions/face-icon-small-blush.gif" border="0"> and there was nothing. I haven't tried to whistle in forever and now it is gone. I tried to whistle several times and no noise came out. I am well hydrated....so that can't be the reason. Is...

We are heading back to church after months and months of not going. I am anxious. The last time we went I was worn out from all the comments and "pity" looks from people. I miss church but don't go because the above drives me nuts. We attend a very touchy hugging church. I don't like to...

I haven't had pancreatitis in 5 years and this morning after breakfast I started having horrible indigestion in my upper stomach between my ribs (more on the left side). I also have a stabbing pain in my upper back. I am burping and a touch nauseated. So far I haven't thrown up. The pain in...

I normally don't have issues with my blood sugars (except for lows). I am not on insulin or any other diabetic medications. The past week I have been doing random morning blood sugars checks (at rising, no food in system). Two of those mornings my sugars have been 105. Normally my sugars...

I freaked out when my nurse told me how much Zenpep is going to cost me (even with health insurance). My insurance does a cheap copay on generic drugs but with name brands-- NO COPAY! One month on Zenpep is $300-500! and that is only one bottle (which will last me 1/2 of a month)!! Yikes...

I was on one of the enzymes taken off the market. They switched me to Creon (via a sample). I got low on that and Dr. sent me Zenpep. With the Zenpep I have no dosage information. The clinic is closed until Monday... I will email them this question then. In the mean time how am I suppose...