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why are the True HEPA filter air purifiers bad? and i'm assuming the "HEPA type" ones are rip-offs, not as good as the real thing. and is it safe to say that ALL ionic air cleaners are bad for us?? if the machine comes with optional ozone control then would it still be okay?

i asked my doc about intal--i was on it as a child and dr. warwick mentioned it in his letter to amy as something he uses a lot. my doc said he has one patient on it and that it isn't really used that much in our clinic. he also told me that intal is more of an asthma medicine that helps with...

i am on a lot of allergy medicine but still having some allergy symptoms so my dr. recommended this nasal spray. i am not really having sneezing or congestion in my nose, but he thought it might help my eyes also. anyone tried this? i've never heard of it. also, have any of you been...

i want to make good out of a bad thing: i want to buy christmas presents that will also help charities. it would be a bonus for it to go to CF. so, besides ally's tee shirt site and the mostly lame (sorry) stuff on the CFF website, anyone know any good places to buy stuff where they will...

has anyone had their vests develop a leak around where the knobs the tubes connect to connect to the vest? this happened with my vest, i've only had it a month. it started as a small leak and got progressively worse. i called Hill-Rom and they sent out another vest and guess what? it is...

Hill-Rom sent me a small sized chest vest to see if it would fit me better than the medium but it is too small. i cannot send it back to them. so, i wondered if anyone here NEEDS a small sized chest vest? i emphasize need as in your insurance won't cover it or some such thing. otherwise i...

i found this information about the seminar last year...looks really great!! <a target=_blank class=ftalternatingbarlinklarge href="http://www.med.umn.edu/peds/cfcenter/education/home.html">2005 CF DAY</a> does anyone know if this is an annual event? i couldn't find anyting about a 2006 date...

i was flipping through the first few pages of the latest issue of Mother Jones magazine and what did i see but an advertisment for oregano oil! (the north american herb & spice brand) i was surprised to say the least, even though Mother Jones isn't exactly "main stream." here is what it said...

here's the history: last week i missed doing my vest and saline one night and then my saline the next morning. (i know, bad.) i felt like crap all day -- getting short of breath really easily. finally that evening i got a GOOD treatment in, and haven't missed one since. (i had also...

this might seem kind of silly, but you know, there are people i know on here only by their screen names! embarrasingly i either never knew or forgot. SO, could everyone who cares to be introduced to the group please state the following: name, age, cf or no cf or related to cfer etc., other...

seriously, i've gotten a yeast infection the last TWO times i've had sex with my boyfriend... (sadly the two times were pretty far apart.) what gives? i've tried reading up but haven't found anything useful. there has been NOTHING unusual about the last two times. please help because i...

i'm curious about how many of us knew someone or knew someone who knew someone who died on 9/11/01? it's amazing how so many people can be connected to those who lost their lives--such a relatively small fraction of the population of our country... my mother's cousins were friends with one of...

i'm curious about how many of us knew someone or knew someone who knew someone who died on 9/11/01? it's amazing how so many people can be connected to those who lost their lives--such a relatively small fraction of the population of our country... my mother's cousins were friends with one of...

the last two days i've noticed times when my heart was just racing. it seemed to be after i wake up (from sleeping or a nap) and when i get up from doing my nebs...any ideas? laura, 27

i uploaded the images to my photo hosting site (yahoo) and i tried to copy and paste the web address into my blog with [img] brackets around it and it won't work! <img src="i/expressions/face-icon-small-sad.gif" border="0"> please help. laura

how long does it take you to do your TOBI? mine takes 35-40 minutes. is my machine just slow??? what a pain in the butt! also, do you think it's bad if i cut it down to 30 mins. in the mornings when i am really pressed for time? laura, 27

hey guys, just wondered how important you think it is to be on the same level as far as exercise/fitness and nutrition/eating habbits with your significant other? i know these are things that are important to us because they HAVE to be. i often wonder if i'd be as healthy as i am if i...

the way i understand it, both tobi and colisitn are used for pseudomonus. my question is, if it is killing all of the PA, what about the other bugs in our lungs? doesn't it give them a chance to "flourish" (relatively) because they have less competition or something? it seems weird that...

i know with IVs it is very important to keep on a schedule so that a consistent amount of the medicine can be in you at all times. my question is, is this equally important with inhaled antibiotics? i have been doing TOBI twice a day but the times have been really inconsistant. laura

hey everyone, i know this link was posted before, but i believe it was before anything had actually been written. marjolein's sister charlotte has updated the last few days. thought some of you might like to hear about how great things are going for her! laura <a target=_blank...