Search results

  1. C

    TOBI for exacerbations *another question*

    I WAS KIND OF SURPRISED AT THE NUMBER OF PEOPLE WHO SAID THEY USED TO USE TOBI FOR EXACERBATIONS BUT NOW JUST CYCLE IT. IF YOU CYCLE TOBI, THEN WHAT DO YOU DO FOR A BOOST DURING EXACERBATIONS? IT SEEMS LIKE IF IT WAS WORKING DURING THOSE TIMES WHEN YOU REALLY NEEDED IT, WHY WOULD YOU WANT TO...
  2. C

    how is marjolein?

    has anyone heard any updates? i thought one would have been posted by now... laura
  3. C

    thinking about getting a vest...

    alright, well, i think i'm gonna get a vest *sigh* <img src="i/expressions/face-icon-small-smile.gif" border="0"> from what i can tell, there is only one choice: (model 104) the full vest or the chest vest. i'm leaning toward the chest vest. i think i tried on the full vest in clinic once...
  4. C

    jenn, question about john_g

    so i read that his kidneys aren't doing well and that is a common thing post tx, right? what i want to know is what does it mean if he gets renal failure? is it a permanent thing or could it be restored ever? thanks, laura
  5. C

    pulmozyme

    hi. do you take pulmozyme once a day or twice a day? i ask because from what i've heard there aren't medical studies that show a significant difference in patient's using it once or twice a day. at my last dr appt my dr suggested trying it twice a day to see if it would make a significant...
  6. C

    diabetics

    i'm always told to keep and eye on my feet but i rarely do. i think i just realized that i really don't like taking care of my feet! i mean, i want them to be there for me and all but... i guess i have this dream that one day i could afford to get pedicures regularly enough that those people...
  7. C

    CF forum awards!

    i had this idea to do an awards kind of thing where everyone can copy and paste the list and then fill in who they think is the best person for each topic. this is not meant to be a competition but more of an exercise in learning how we all see each other's strengths and contributions to the...
  8. C

    who are the people?!?!

    you know, the guy in the bike rider-looking shirt, the pretty woman, the little girl... just curious.
  9. C

    new information about CF "ideal weight"

    talking to the nutritionist at CF clinic recently i found out that there is a new way that they determine the "ideal weight" for a CF patient. it used to be that they would plot you on the height/weight chart and i guess they wanted to see you as close to "normal" as possible. now, based on...
  10. C

    thinking about a trip...

    hey, my boyfriend and i are planning a week-long vacation. we have narrowed it down to either costa rica or seattle. i have never been to the pacific northwest US and have heard so many good things about seattle. the trip would be in september or october though, and i'm not sure if that is...
  11. C

    salt pills

    since the other salt thread took off, i wanted to ask something else i've been curious about since i have started taking a LOT more salt pills lately. how many salt pills do you guys take at a time? i live in the south of the US and it gets very hot down here. however, i don't as a habit...
  12. C

    how many ADEKs?

    please state how old you are and how many ADEK vitamins you take a day. are your vitamin levels good? do you take another mulitvitamin as well? laura i am 27. i take one ADEK a day, and 2 super duper multivitamins and my vitamin levels have always been good.
  13. C

    dog's are getting fixed

    so my two boys, golden retrievers 11 months old, got fixed today. i was surprised that they had to stay over night at the vet as a standard thing. i have a lot of experience getting cats fixed but never with dogs. i did expect this to be a little harder on them since we waited until they were...
  14. C

    general health question

    so lately i've been thinking about the water that i drink. right now i just use a britta filter, which i know doens't remove much. i have been drinking more bottled water lately; i am especially addicted to sparkling water since my trip to europe last year. one day i would like to shell out...
  15. C

    cystic fibrosis and hockey??

    hey, i wanted to share this with everyone and i hope that you will appreciate it even half as much as i do. in case any of you haven't been reading my blog for the last couple of months, i have been very very into the NHL playoffs this year as i watched my team, the Carolina Hurricanes, win...
  16. C

    kelly (MyNewfy) how are you??

    hey kelly, i was wondering how you are doing. how are things? do you know when you're getting out?? take care, thinking of you-- laura
  17. C

    salt

    just curious how you guys know when you need salt? what does your body do to tell you? i remember when i was little i got really nauseaus and got sick. that was a severe situation though, haven't had anything like that happen since i've known to prevent it. now i still get this weird...
  18. C

    mucinex

    i was reading through the old mucinex posts but it has been several months so i thought i'd ask again about who is using it, during what times (everyday or only for exacerbations) and how much you take? also: when i was younger my dr. prescribed guaifenesin to me for when i was sick and...
  19. C

    tips for fighting sinus infection

    hey, i had a cold last week and it seems to have settled into my sinuses...of course my lungs are feeling extra congested too, but i believe that is secondary to the sinus thing. i was wondering if any of you have suggestions for getting rid of a sinus infection? for lung infections you can do...
  20. C

    for those on SSI & SSDI

    can anyone tell me if getting an inheritance could affect your eligability to get or stay on either of these two programs? i know they are very thorough about checking all of your assets. thanks!
Top