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  1. M

    How many calories do you get per day?

    I was wondering how many calories on average you consume per day? And were you told by your doctor about how many you should be getting each day? I ask because I'm one of those weird cfers that hasn't ever really had trouble getting weight on. My metabolism did pick up alot after having my...
  2. M

    Pregnant and a little blue

    I know I'm "supposed" to be jumping over the moon, but the past couple of days I just feel down and stressed. Mainly about staying healthy and the baby being healthy. I KNOW I need to take my meds, and of course its not like I'm going to stop them, but I just worry about bad effects from them on...
  3. M

    how to change username

    Can anyone tell me? Can't remember how..
  4. M

    WHOA My Vest just blew!

    I was on the last minute of my pt and my vest made a weird sound-almost like the electric went out-and stopped. Its now flashing a sign that says Device Error 2. Please call for service!! Whoa, this ever happen to anyone. Now I'm scared.
  5. M

    drum roll....BFP!!!!

    Yes I am almost 8 weeks pregnant!! Its been a long long road. For those who don't know-we have a 3 yr old daughter. About 2 yrs ago I got extremely sick from complications from a mold allergy-my pfts got so low my doc said I needed to forget about having more children-my anxiety about wanting...
  6. M

    Cayston affecting Pancreatic Sufficiency

    I guess its a long shot, but anyone hear of Cayston affecting their pancreatic sufficiency for the better, even slightly? My stomach woes of late are really making me scratch my head. I just want to figure out whats going on. I've switched back to my Pancreaze and I'm still not feeling well. It...
  7. M

    Miralax-how often/dosage?

    I'm sure everyone is tired of hearing my bowel rants by now, sorry. I'm just basically miserable at this point. Thing is, I'm having regular bowel movements-about 2 per day. I'm just bloated and achy after every meal, and by the end of the day I need to go up 2 sizes in my jeans bc I'm so...
  8. M

    Pari Trek S

    I'm not a huge fan of 'portable' nebs-notoriously slow, but going overseas I'll need a neb. I ordered a Pari TreK S. I've tried a few other options out there. I guess (other than the eflow which my doc doesn't recommend and I don't care for either), they are all slow. Anyway, for anyone that has...
  9. M

    Lost Pancrease, went to Creon, BAD-

    So I lost my Pancrease like other here did. They put me on Creon, which I was on for about a month. I had pain after each meal, terrible bloating/distention. Nausea, mild vomiting, <b>Constipation-oh my, so bad</b>. Just miserable. Finally they ordered Pancreaze for me-the new pancrease. I'm on...
  10. M

    1 yr of ttc

    In October it will be 1 yr that we've been ttc. (we took a few months off in late winter to avoid those worst winter months) I can hardly hold back the tears as I'm writing this. I know 1 yr is nothing compared to what other couples go through. I just didn't expect it. With my 3 yr old we got...
  11. M

    Women-Cayston/Abx affecting your cycle?

    I began Cayston 3 months ago. (I'm on the 2nd cycle of it now) I have years of charting my cycle and I've always been regular. It may be a coincidence, but the past 2 cycles have been so off. Strangely-I am having mucus come out of me at the oddest times. Of course there is the typical...
  12. M

    CT's with Contrast and TTC

    (say that 10 times fast) I had a CT with contrast of my gallbladder last week (which turned out fine)-I'm wondering if its considered safe to ttc this cycle? I am trying to ask around. I had the test on day 5 of my cycle. I asked the nurse who administered the contrast and she said its safe...
  13. M

    GI troubles-new enzymes

    Well I just stopped my pancrease mt16's (as others have). Just made the switch to Creon 24's. Since starting them I've been so constipated and distended. I hardly want to eat bc I know by 6 pm I'll be so bloated and uncomfortable. I called the doc and am waiting for a reply. Wondering if I need...
  14. M

    Eggwhite Cervical Mucus Ongoing

    I ovulated (or so I thought)-on day 18, which is typically when I ovulate. My egwcm was lighter than usual, but I had some for 2 days. Again, typical. *this is of course, the month I decided to stop using ovulation kits bc we weren't trying. Now I'm kicking myself. 1 week later, about day 26...
  15. M

    Cf and Gallbladder problems

    Can anyone tell me what the connection between cf and gallbladder issues is? I've seen plenty of cfers with them. I had a cat scan done and it showed up 'sludge' in my gallbladder. No stones, but I guess an environment that could lead to it?? For those of you that have had issues, what would you...
  16. M

    TTC and Drugs-opinions.

    I caught a nasty cold from my family. This one is so bad that my family members even had to go on antibiotics-which they NEVER do. So now I'm wondering what to do. I'm not any worse than my sister or husband was at this point with the cold. But its a gunky bronchial cough. I could ride it out...
  17. M

    traveling with cayston

    Most of us just started Cayston, but has anyone had the opportunity to travel with it yet... I am going away (by car) for 3 days. I hate that I have to bring my big steam sterilizer. I'm wondering if there's another option.
  18. M

    Moms with Cf

    My LO is going to be 3. I'm sitting on this machine about 2 hours a day total now. When I do pt, she stays in the living room (I have it sectioned off), and she watches Tv while I sit in the next room (w a monitor) and do my pt. I'm wondering what you moms do with the kids while you are doing...
  19. M

    Cayston users,*Updated

    I'm going to start Cayston in the coming week. For you users I have a few questions- When do you take the med-what schedule are you on... I have a few things I'm wondering about cleaning the neb also. I've seen the video and read all the instructions. I have my nuk, and tupperware. I have a 3...
  20. M

    Roadblocks in TTC

    So as the topic says, we've hit some blocks in ttc. We're on a break from it for a couple months and using bc again. We decided to opt for not planning on having a baby in the winter months. (gettting pregnant now would mean a winter baby) If we resume in a couple months, even having a baby at...
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