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hey, i am regular like clockwork. i haven't had a bm in 48 hrs, for me thats never. i'm so bloated now. i can feel it brewing. what do you do when you feel a blockage brewing, or are really backed up... Thanks!

Hubby and I have been ttc for 6 months now and nothing. We've seen a good doctor and even though its only been 6 mons he is willing to look into 'helping' the process along for us with intervention. I know that 6 moths (cf or not) is no reason to panic. But my hubby and I are in an odd...

Hey guys, Some of you out there may know that St. Vincents Hosp in nyc is closing. The facility itself is an absolute dump-the people and staff however are amazing. My cf center is affiliated with St. V's so it will be without a hospital and office until things are sorted out. Nothing is...

OK, so hubby and I tried my past cycle. I've been avoiding talking about it too much-I don't know, the jinx thing I guess. Plus it feels good to have something that is just mine/ours. My last period (day 1) was Oct 22. A couple days before my next period would have been due, I got a faint...

Hey guys.... Ive been feeling down lately. (i think its partly hormones being wacky). I know I can't be the only mom struggling to make sense of it all, so I thought it would be nice to share how we all cope with the difficulties of being a mom with cf. When you can't run after the toddler...

yesterday on tv there was a blip about a connection between levaquin and tendon rupture. it said the fda recently added a warning reg this. anyone heard anything about this from their docs? hope its a coincidence, but i just broke my arm last week-and bruised my wrist tendon severely. i will...

something i've wondered for a long time. does tobi show up in the blood stream the way tobra does?-therefore, does it affect the liver too? i get occasional ringing in my ears-i havent been on ivs or hard abx for a long time, so its not that. i'm on month on/off tobi though. i mean, i've had...

Yes, I want to get it, asap. I've been weighing the benefit/risk ratio and to me, its a no brainer. (but thats just me) I already got my seasonal flu vax. I'm on a waiting list at 2 docs for this vax though. Some docs have the mist, but the cf clinic has forbid the mist-which I knew, but I've...

I remember my genetic counselor explaining to me that certain mutations affect specific amino acids-example, df508 inhibits phenylanine. Anyone remember any details on this? I'm curious to see which amino acid my rare mutation, G551S, changes.

Its been a while. I've been reading some of your stories of new babies, babies soon to come-and a huge huge congratulations to all of you. I'll be reading more details and catching up more soon. To hopeful moms that are waiting and hoping-I've been there and my heart goes out to you and warm...

I've hit the 2 year old mark and my little girl has been interested in using the potty for months now. But its this week that I'm really 'going' for it with her. So moms, what did you/are you doing to take that big step? I'd love to hear all stories and tips that worked for you! Thanks...

I'd like to ask some questions to all the moms of biological children that have had more than 1. How long did you wait to have the 2nd? Probably obvious-but was it a hard decision? With the first pregnancy, did your pfts drop afterwards? With the 2nd pregnancy, did your pfts drop even lower...

hey, i'm going abroad shortly and looking into the best way to do my treatments. i have a travel neb, invacare stratos, but voltage wise it won't be compatible for the middle east. i have a portable omrom which has slow neb times. its double the time of my regular neb. i'm wondering for those...

i know this doesn't solely relate to pregnancy, but i've made so many friends in this category i feel like its my 'safe' place. i am feeling inadequate, tired and don't know what direction to go in. we're trying to set up a weekly schedule so i can fit in 3 workouts per week. i am trying to be...

hey they just ordered this for me and i guess i'll see tomorrow what the deal is. i've had it done in the hosp, but never at home. home health care said they will not do this. i find that weird. so i have to go to quest-i hope they'll give me the specimen collection pieces-no one seems to know...

I don't want to exclude anyone-this applies to dads too, grandmas, or any patients that have insight here! Right now I feel kinda like supermom. (or maybe its crazymom?-?) I got my Picc hanging here, balancing my eclipse ball and baby bottle. I'm not 'sick' for this tuneup. My pfts have been...

I know its been mentioned here before, but my question is for users and their opinions. And anyone else that wants to pipe in too is fine. If you have used it, please share how you heard about it, your reservations, and how you are feeling! I'm big on alot of supplements, and generally I think...

I am getting bad energy slumps midday. I'd nap but I can't always do that plus I'm not a good daytime sleeper, never have been. I wake up around 8, have breakfast, do therapy and take care of L.O. From about 11-2 I have no energy. I just want to lay on the sofa and veg. My legs ache, my eyes...

Its my first time on Levaquin. I've been on it 3 days now. I can't remember the last time I felt this tired. I feel like I could fall asleep all day-getting anything done is a battle. Bending down to pick things up is exhausting. Is this typical for Levaquin? My sputum seems to be getting...

hi. i am 21 with cf, and experiencing severe leg swelling occuring with odd "bloody like" splotchy bruises. it occurs mainly from my feet up to my mid thigh. it is very painful and limits my activity and stamina. i have tried lots of things so far, and regretfully my cf doc hasnt given me much...