Search results

  1. L

    Is Cystic Fibrosis linked with High IQ?

    I don't know about other people or if there's really any connection, but I have a "genius or near genius" IQ (140 or higher). I know it doesn't have to do with the disease simply making me strive harder, etc. like others suggested because I wasn't diagnosed until I was 19 and I've had people...
  2. L

    Is Cystic Fibrosis linked with High IQ?

    I don't know about other people or if there's really any connection, but I have a "genius or near genius" IQ (140 or higher). I know it doesn't have to do with the disease simply making me strive harder, etc. like others suggested because I wasn't diagnosed until I was 19 and I've had people...
  3. L

    Is Cystic Fibrosis linked with High IQ?

    I don't know about other people or if there's really any connection, but I have a "genius or near genius" IQ (140 or higher). I know it doesn't have to do with the disease simply making me strive harder, etc. like others suggested because I wasn't diagnosed until I was 19 and I've had people...
  4. L

    Grandson Newly Diagnosed

    Hey! I have the same mutations as your grandson. Supposedly everyone has different symptoms, even if they have the same gene. I know 3849+10kbC>T is supposed to be more mild. I have m.abscessus (a type of NTM), staph, RA, and bronchiectasis (plus a couple more mild diseases). I've also cultured...
  5. L

    Grandson Newly Diagnosed

    Hey! I have the same mutations as your grandson. Supposedly everyone has different symptoms, even if they have the same gene. I know 3849+10kbC>T is supposed to be more mild. I have m.abscessus (a type of NTM), staph, RA, and bronchiectasis (plus a couple more mild diseases). I've also cultured...
  6. L

    Grandson Newly Diagnosed

    Hey! I have the same mutations as your grandson. Supposedly everyone has different symptoms, even if they have the same gene. I know 3849+10kbC>T is supposed to be more mild. I have m.abscessus (a type of NTM), staph, RA, and bronchiectasis (plus a couple more mild diseases). I've also cultured...
  7. L

    How do you feel if you miss a treatment?

    I always feel bad after missing a treatment. My chest feels tight or clogged and I feel like I'm breathing through a cheese cloth. It's not so bothersome when I miss my pulmozyme, but it's horrible when I miss my albuterol or hyper-sal. I even feel that way when I just take them a few hours...
  8. L

    How do you feel if you miss a treatment?

    I always feel bad after missing a treatment. My chest feels tight or clogged and I feel like I'm breathing through a cheese cloth. It's not so bothersome when I miss my pulmozyme, but it's horrible when I miss my albuterol or hyper-sal. I even feel that way when I just take them a few hours...
  9. L

    How do you feel if you miss a treatment?

    I always feel bad after missing a treatment. My chest feels tight or clogged and I feel like I'm breathing through a cheese cloth. It's not so bothersome when I miss my pulmozyme, but it's horrible when I miss my albuterol or hyper-sal. I even feel that way when I just take them a few hours...
  10. L

    Late Diagnosis

    I wasn't diagnosed until 19. Yeah, that late. I started being treated for asthma at 7 and they kept switching the meds because they weren't working. I kept getting all kinds of diseases like upper respiratory infections and MRSA staph in my sinuses. Doctors kept running breathing tests on me and...
  11. L

    Late Diagnosis

    I wasn't diagnosed until 19. Yeah, that late. I started being treated for asthma at 7 and they kept switching the meds because they weren't working. I kept getting all kinds of diseases like upper respiratory infections and MRSA staph in my sinuses. Doctors kept running breathing tests on me and...
  12. L

    Late Diagnosis

    I wasn't diagnosed until 19. Yeah, that late. I started being treated for asthma at 7 and they kept switching the meds because they weren't working. I kept getting all kinds of diseases like upper respiratory infections and MRSA staph in my sinuses. Doctors kept running breathing tests on me and...
  13. L

    Grandparent wanna-be

    It's really up to him I suppose. I know my personal decision is to not have children because I don't believe I could just leave my child without a parent. If this is something he decides to do, he should make sure that his girlfriend is tested for CF beforehand. In my personal opinion, if both...
  14. L

    Grandparent wanna-be

    It's really up to him I suppose. I know my personal decision is to not have children because I don't believe I could just leave my child without a parent. If this is something he decides to do, he should make sure that his girlfriend is tested for CF beforehand. In my personal opinion, if both...
  15. L

    Grandparent wanna-be

    It's really up to him I suppose. I know my personal decision is to not have children because I don't believe I could just leave my child without a parent. If this is something he decides to do, he should make sure that his girlfriend is tested for CF beforehand. In my personal opinion, if both...
  16. L

    Latecomer

    So I was diagnosed with CF about a year and a half ago (at 19). Yeah, that's pretty late for a CF diagnosis, I know. I usually feel like I'm dealing with it okay, but sometimes, like tonight, I get really depressed and just want to start crying. How did y'all deal with your diagnosis? Any tips...
  17. L

    Latecomer

    So I was diagnosed with CF about a year and a half ago (at 19). Yeah, that's pretty late for a CF diagnosis, I know. I usually feel like I'm dealing with it okay, but sometimes, like tonight, I get really depressed and just want to start crying. How did y'all deal with your diagnosis? Any tips...
  18. L

    Latecomer

    So I was diagnosed with CF about a year and a half ago (at 19). Yeah, that's pretty late for a CF diagnosis, I know. I usually feel like I'm dealing with it okay, but sometimes, like tonight, I get really depressed and just want to start crying. How did y'all deal with your diagnosis? Any tips...
  19. L

    Tasting Salty?

    I've never had anyone actually tell me that I taste salty, but after I sweat and have cooled down I can actually see the dried up salt on my skin. I have to rub my skin with a damp cloth to get it off, otherwise I look like I'm ashy and in serious need of some lotion.
  20. L

    Tasting Salty?

    I've never had anyone actually tell me that I taste salty, but after I sweat and have cooled down I can actually see the dried up salt on my skin. I have to rub my skin with a damp cloth to get it off, otherwise I look like I'm ashy and in serious need of some lotion.
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