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and some new players enter the field at last!

Amy, I thought I read that the 770 might work for your mutation? Is yours one of the gating mutations? If so, have you attempted to get Kalydeco yet? I just thought I read on the FB site I mentioned above that Kalydeco had been approved in the US for other gating mutations (which I thought yours...

Amy, I thought I read that the 770 might work for your mutation? Is yours one of the gating mutations? If so, have you attempted to get Kalydeco yet? I just thought I read on the FB site I mentioned above that Kalydeco had been approved in the US for other gating mutations (which I thought yours...

Drama (it's Mandy isnt it?) My son doesnt come on here at all sorry <img src="i/expressions/face-icon-small-sad.gif" border="0"> He is a member of the FB group 'praying for success with v770' as am I and my daughter. He has posted on there about his experiences. He is doing really well and...

Drama (it's Mandy isnt it?) My son doesnt come on here at all sorry <img src="i/expressions/face-icon-small-sad.gif" border="0"> He is a member of the FB group 'praying for success with v770' as am I and my daughter. He has posted on there about his experiences. He is doing really well and...

HI Amy I tried to do a quote but it jumped off...re your response to CFRD and beta cells. I dont believe that Beta cells are destroyed in CFRD, that is what happens with Type 1 diabetes. With CFRD I believe that the pancreas doesnt work as well and there may be some insulin resistance which...

HI Amy I tried to do a quote but it jumped off...re your response to CFRD and beta cells. I dont believe that Beta cells are destroyed in CFRD, that is what happens with Type 1 diabetes. With CFRD I believe that the pancreas doesnt work as well and there may be some insulin resistance which...

My son has been on it for the last two years the same as Lauren (he is 32). He noticed a difference staright away too, with in a week. He would have to fill you in with all the extra stuff Lauren has, but I know that his sweat no longer tasted salty, he got back to playing sport, his fev rose...

My son has been on it for the last two years the same as Lauren (he is 32). He noticed a difference staright away too, with in a week. He would have to fill you in with all the extra stuff Lauren has, but I know that his sweat no longer tasted salty, he got back to playing sport, his fev rose...

HI Tasha Just adding to Lauren's comment, my son has been in the trial also and is still receiving the drug on open label (all participants now get the actual drug rather than half getting placebo). I have two other children who do not have access to the drug, and wont be able to get it for...

HI Tasha Just adding to Lauren's comment, my son has been in the trial also and is still receiving the drug on open label (all participants now get the actual drug rather than half getting placebo). I have two other children who do not have access to the drug, and wont be able to get it for...

My son stopped his enzymes on Kalydeco due to the reasons Lauren outlined above. I dont necessarily agree with Lauren thpough because we dont really know. I actually think that if the drug is started straight away the pancreas wont get clogged and the digestive enzmes will continue to flow...

My son stopped his enzymes on Kalydeco due to the reasons Lauren outlined above. I dont necessarily agree with Lauren thpough because we dont really know. I actually think that if the drug is started straight away the pancreas wont get clogged and the digestive enzmes will continue to flow...

Hi Stephanie My three kids have the same combination too. They are all doing very well and the two oldest didnt have many health issues from cf until they were in their late teens. My oldest has been in the vertex trial for two years. Kalydeco is due for the market next year in the US. It's...

Hi Stephanie My three kids have the same combination too. They are all doing very well and the two oldest didnt have many health issues from cf until they were in their late teens. My oldest has been in the vertex trial for two years. Kalydeco is due for the market next year in the US. It's...

Hi Stephanie My three kids have the same combination too. They are all doing very well and the two oldest didnt have many health issues from cf until they were in their late teens. My oldest has been in the vertex trial for two years. Kalydeco is due for the market next year in the US. It's...

yes you can, it is your (and the other person's) choice to make and no one can tell you otherwise.

yes you can, it is your (and the other person's) choice to make and no one can tell you otherwise.

yes you can, it is your (and the other person's) choice to make and no one can tell you otherwise.

Ofcourse two people with CF can date with they want to, just like two people without cf can date <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br> <br>Infection control was bought in with the advent of pseudomonas Cepacia, which spread through the clinics in the 1980s due to...