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  1. D

    People on the new drugs: How do you REALLY feel?

    Hi Roe <br> <br>Yes, he's had pseudomonas for years. I dont know if it's still dwelling in there somewhere, and I dont know if they've tested him for it, I'll find out next time I see him (which was yesterday haha). He hasnt had any problems with colds, flus or the like, hasnt needed any...
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    People on the new drugs: How do you REALLY feel?

    Well, we thought the same about the pancreas, but he found that he didnt need the enzymes when he started on the drug. He really shouldnt ahve stopped taking them due to being in the trial but he now hasnt had any since he stopped (about 18mths ago). He is doing great, cant wait to get this...
  3. D

    People on the new drugs: How do you REALLY feel?

    Well, we thought the same about the pancreas, but he found that he didnt need the enzymes when he started on the drug. He really shouldnt ahve stopped taking them due to being in the trial but he now hasnt had any since he stopped (about 18mths ago). He is doing great, cant wait to get this...
  4. D

    People on the new drugs: How do you REALLY feel?

    Well, we thought the same about the pancreas, but he found that he didnt need the enzymes when he started on the drug. He really shouldnt ahve stopped taking them due to being in the trial but he now hasnt had any since he stopped (about 18mths ago). <br /> <br />He is doing great, cant wait to...
  5. D

    Vertex drugs show promise with DF508

    I disagree, I think that a separate category will mean that lots of people will not be aware of research that's going on (unless someone also posts on the general forum). Research brings great hope to people, I wanted everyone to know about the fantastic results my son had (is still having)...
  6. D

    Vertex drugs show promise with DF508

    I disagree, I think that a separate category will mean that lots of people will not be aware of research that's going on (unless someone also posts on the general forum). Research brings great hope to people, I wanted everyone to know about the fantastic results my son had (is still having)...
  7. D

    Vertex drugs show promise with DF508

    I disagree, I think that a separate category will mean that lots of people will not be aware of research that's going on (unless someone also posts on the general forum). <br /> <br />Research brings great hope to people, I wanted everyone to know about the fantastic results my son had (is...
  8. D

    People on the new drugs: How do you REALLY feel?

    My son has been on the v770 since November 2009 (i think). Speaking for him here, but he has told me that he feels great. He has not been sick once or had any antibiotics since starting the trial. He is back playing soccer etc. again....he is doing everything....he doesnt need digestive enzymes...
  9. D

    People on the new drugs: How do you REALLY feel?

    My son has been on the v770 since November 2009 (i think). Speaking for him here, but he has told me that he feels great. He has not been sick once or had any antibiotics since starting the trial. He is back playing soccer etc. again....he is doing everything....he doesnt need digestive enzymes...
  10. D

    People on the new drugs: How do you REALLY feel?

    My son has been on the v770 since November 2009 (i think). Speaking for him here, but he has told me that he feels great. He has not been sick once or had any antibiotics since starting the trial. He is back playing soccer etc. again....he is doing everything....he doesnt need digestive enzymes...
  11. D

    New game

    eheheh *evil chuckle strikes again!
  12. D

    New game

    eheheh *evil chuckle strikes again!
  13. D

    New game

    eheheh *evil chuckle strikes again!
  14. D

    when your child finds out the median age

    I didnt ever tell any of my kids that they might live til (5, 13, teenage, 30 - these are the life expectancy changes since my first was diagnosed 31.5 years ago), but what I did tell them at an appropriate time and age is that CF CAN make some people very sick, and some people die from it...
  15. D

    when your child finds out the median age

    I didnt ever tell any of my kids that they might live til (5, 13, teenage, 30 - these are the life expectancy changes since my first was diagnosed 31.5 years ago), but what I did tell them at an appropriate time and age is that CF CAN make some people very sick, and some people die from it...
  16. D

    when your child finds out the median age

    I didnt ever tell any of my kids that they might live til (5, 13, teenage, 30 - these are the life expectancy changes since my first was diagnosed 31.5 years ago), but what I did tell them at an appropriate time and age is that CF CAN make some people very sick, and some people die from it...
  17. D

    New game

    oooh!!! Im scared!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  18. D

    New game

    oooh!!! Im scared!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  19. D

    New game

    oooh!!! Im scared!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  20. D

    I hate CF

    Tom, really sorry to hear this bad news. Keep the faith, tomorrow is another day, prayers to you all and hoping something turns your way xxx
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