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Not Your Ordinary Boxing Match Having several fatalities under its belt Cystic Fibrosis remains the undefeated champion. Life with c.f. is like a boxing match. except the rounds last for months and the fight goes on for years, not just an hour or two. Like a boxer training before and after...

I just wanted to let you all know that Jamey ....jinxedn76.... is in the hospital (Barnes Jewish) and is not doing good. The CO2 in his body is really high and he has on a CPAP?? Mask that's sealed over your face. Jamey is the one who wrote the CF anology titled "Not Your Ordinary Boxing...

I just wanted to let you all know that Jamey ....jinxedn76.... is in the hospital (Barnes Jewish) and is not doing good. The CO2 in his body is really high and he has on a CPAP?? Mask that's sealed over your face. Jamey is the one who wrote the CF anology titled "Not Your Ordinary Boxing...

Hi. My 10 yr old step daughter is currently taking Cipro. We are going on a cruise next week and her CF doc wanted to put her on this before we go. She's on the 2nd week of taking it. 2 per day. Anyway, her eyes are really bloodshot. I know there can be side effects like sun sensitive skin...

Hi. This is my first year participating in the Great Strides Walk. (My 10 yr old step daughter has CF) I've been raising money via a letter campaign. I mailed letter to family, friends and clients. Also, I've gone to many of our local businesses and left them with the letter. I've mailed/given...

Hi. This is my first year participating in the Great Strides Walk. (My 10 yr old step daughter has CF) I've been raising money via a letter campaign. I mailed letter to family, friends and clients. Also, I've gone to many of our local businesses and left them with the letter. I've...

Is having an outtie bellybutton a common thing with CF ? Angie (stepmom to 10 yr w/ CF/CFRD)

Hi Jennifer.... I am a stepmom to a 10 yr old w/ CF. Would love to talk w/ you. my email awilliams@cablemt.net Angie

Hi. In response to the last response.... you're right who knows what the future may bring. I was at a funeral last year for a 13 yr old who died from streptocarcal (sp?) pnemonia. A heathy 13 yr old.! My mother died at 52 w/ cancer (diagnosed 1mth) & there are Cfers older than that. I...

Our family is planning a cruise to Alaska - June 05. I was wondering if there are any CF health concerns on a cruise? Do you bring your Vest with you when you travel? Do you insure it when flying or in our case on cruise? Thanks! Angie (Stepmom to 10 yr old CF/CFRD)

Anyone....We're online now if u want to join.... noone is ever in here<img src="i/expressions/face-icon-small-frown.gif" border="0">

RE:Help me out Cfers...and non Cfers.... Hi Jenhum. I was just wondering how your speech went. Did you use Jamey's analogy? He went into hospital on Sunday for IVs. Just spoke w/ him and he asked about your speech. Thanks. Angie

Ashley....the bracelet is the one from CFF.org that says BREATHE on it.

Hi Ashley. I have one left and would br glad to mail it to you. Its an adult size and these bracelets did run kinda big. I wear mine everyday and have given out the rest. (except for one). You can email me your address and I will mail it to you. My email is...... awilliams@cablemt.net Angie...

Hi. I know of a guy who is 30 w/ Cf, diagnosed at 8 yrs old who is having a baby, TWINS!, w/ his wife, no CF. They had her baby shower last week!! I believe they tried 3 or 4 times before getting pregnant. My husband just had a vasectomy reversal last month in Seattle by a urologist in a...

Here's a suggestion.... maybe give up the cigarette for a can of copenhagen or skoal. You'll get your nicotine fix and the rest of us won't have to smell your smoke.

I wondering..... even if someone doesnt smoke around you , does still effect your lungs. For example... being in a car that gets smoked in. Walking thriough a garage that gets smoked in. You can still smell that disgusting smoky smell even though there's no smoke in the air. Would this...

I also have a "thing" with smokers. I think about my 10 yr old stepdaughter who has CF. When shes older... will she not be able to go into places b/c of smokers?? I know now we don't go places b/c of the smoke factor. I hope she makes the choice of not wanting to be around it. But if...

We live in a rural community, population 1700, in Montana. Hayleys CF clinic is 80 miles away in Billings. (1 hr 15min drive) Her Cf docs are from Denver and come to Billings every 3 mths. She was just hospitalized for the first time in 7 years (in for a tuneup which also led to diagnosing...

That was from me.