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  1. E

    Need some info on Nevada

    We are trying like crazy to get back to the mainland!!! But the hardest part we will encounter is making sure we can afford the medical care or that we can get assistance from the state. If anyone has lived or lives in Nevada, we would love as much info as you can give. Would you mind telling me...
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    Does Cf and Food Alleries go together?

    So glad RebJane that the sodium bicarbonate worked so well for your daughter!!! What would we do without the internet and these forums!!!! My oldest also went up 5-7 pounds very quickly!! blessings, missa
  3. E

    Does Cf and Food Alleries go together?

    So glad RebJane that the sodium bicarbonate worked so well for your daughter!!! What would we do without the internet and these forums!!!! My oldest also went up 5-7 pounds very quickly!! blessings, missa
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    Moving to Hawaii....

    Dr. wu, do u take hmsa quest? we r trying to move back to the mainland, but would love a better pulmonologist then we are seeing currently in honolulu, for the time being!!
  5. E

    Moving to Hawaii....

    Dr. wu, do u take hmsa quest? we r trying to move back to the mainland, but would love a better pulmonologist then we are seeing currently in honolulu, for the time being!!
  6. E

    Does Cf and Food Alleries go together?

    I think a lot of CFers with pancreatic insufficiency suffer from symptoms of food intolerances more than food allergies. Their digestive systems just have difficulty digesting certain foods CJPsMom, have you looked into adding sodium bicarbonate to all times you add enzymes??? We saw huge...
  7. E

    Does Cf and Food Alleries go together?

    I think a lot of CFers with pancreatic insufficiency suffer from symptoms of food intolerances more than food allergies. Their digestive systems just have difficulty digesting certain foods CJPsMom, have you looked into adding sodium bicarbonate to all times you add enzymes??? We saw huge...
  8. E

    In ER...admitting to PICU

    Praying!!!!!!!
  9. E

    In ER...admitting to PICU

    Praying!!!!!!!
  10. E

    Going Gluten Free

    I have, fortunately, not had to consider CFRD into our diet change. Thus I have no real clue what to look for as to if it would fit in your diet <img src="i/expressions/face-icon-small-sad.gif" border="0"> I use sorghum flour, tapioca flour, almond meal, oats, flax meal, and rice flour when...
  11. E

    Going Gluten Free

    I have, fortunately, not had to consider CFRD into our diet change. Thus I have no real clue what to look for as to if it would fit in your diet <img src="i/expressions/face-icon-small-sad.gif" border="0"> I use sorghum flour, tapioca flour, almond meal, oats, flax meal, and rice flour when...
  12. E

    Going Gluten Free

    Find alternatives!!! They have great tasting gluten free pastas!!! Thai kitchen has some yummy fettucine type rice noodles and Ancient Harvest sells yummy corn and quinoa pasta. I have worked with many different gluten free flours and found some awesome recipes for many things. Check out my...
  13. E

    Going Gluten Free

    Find alternatives!!! They have great tasting gluten free pastas!!! Thai kitchen has some yummy fettucine type rice noodles and Ancient Harvest sells yummy corn and quinoa pasta. I have worked with many different gluten free flours and found some awesome recipes for many things. Check out my...
  14. E

    OT Juice

    Just did some browsing on the internet for info on arsenic and juice. It looks like the arseninc is coming from juices imported from China and perhaps other countries that do not have arsenic banned. If you buy juice that is from apples grown in the USA, then I believe we are fine. I purchase...
  15. E

    OT Juice

    Just did some browsing on the internet for info on arsenic and juice. It looks like the arseninc is coming from juices imported from China and perhaps other countries that do not have arsenic banned. If you buy juice that is from apples grown in the USA, then I believe we are fine. I purchase...
  16. E

    OT Juice

    Just did some browsing on the internet for info on arsenic and juice. It looks like the arseninc is coming from juices imported from China and perhaps other countries that do not have arsenic banned. If you buy juice that is from apples grown in the USA, then I believe we are fine. I purchase...
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    HTS prior to Pulmozyme

    Katie, i remember hearing that a wait time is good. We usually do HTS first thing in the morning, eat breakfast, get ready for the day and then do pulmozyme. I can't tell you if that wait time makes any difference for Ethan, but we do it anyway <img src="i/expressions/face-icon-small-smile.gif"...
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    HTS prior to Pulmozyme

    Katie, i remember hearing that a wait time is good. We usually do HTS first thing in the morning, eat breakfast, get ready for the day and then do pulmozyme. I can't tell you if that wait time makes any difference for Ethan, but we do it anyway <img src="i/expressions/face-icon-small-smile.gif"...
  19. E

    HTS prior to Pulmozyme

    Katie, i remember hearing that a wait time is good. We usually do HTS first thing in the morning, eat breakfast, get ready for the day and then do pulmozyme. I can't tell you if that wait time makes any difference for Ethan, but we do it anyway <img src="i/expressions/face-icon-small-smile.gif"...
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    Heading back to 60+ FEV1 from 26.

    I am following your story incomudrox and cannot wait to here your numbers at the end of the month. No matter what those numbers are, you are doing a great job at taking control of your health and not letting CF dictate your life! Praising God for the progress you have made!!! Missa
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