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    Ataluren (PTC124) Are study participants close to finishing?

    I am just wondering as I haven't heard anything as of late. Some of you were doing the long term study and I was just wondering how close are you to finishing. I know over a public forum you can't say how things went so please don't tell that.
  2. G

    Ataluren (PTC124) Are study participants close to finishing?

    I am just wondering as I haven't heard anything as of late. Some of you were doing the long term study and I was just wondering how close are you to finishing. I know over a public forum you can't say how things went so please don't tell that.
  3. G

    Hey gang...

    Wow that is rough. Especially when CF took you first child at such a young age. I hope Dakota remains healthy for a long time.
  4. G

    Hey gang...

    Wow that is rough. Especially when CF took you first child at such a young age. I hope Dakota remains healthy for a long time.
  5. G

    Hey gang...

    Wow that is rough. Especially when CF took you first child at such a young age. I hope Dakota remains healthy for a long time.
  6. G

    Medical Alert Bracelet

    Wow!!! You guys are such a terrific resource. I will get the bracelet for my son. I never even thought of putting additional info on the bracelet or just having my son wearing it some of the time like for trips. Thanks.
  7. G

    Medical Alert Bracelet

    Wow!!! You guys are such a terrific resource. I will get the bracelet for my son. I never even thought of putting additional info on the bracelet or just having my son wearing it some of the time like for trips. Thanks.
  8. G

    Medical Alert Bracelet

    Wow!!! You guys are such a terrific resource. I will get the bracelet for my son. I never even thought of putting additional info on the bracelet or just having my son wearing it some of the time like for trips. Thanks.
  9. G

    Medical Alert Bracelet

    So we got a pamphlet from my son's school for a free Medical Alert Bracelet. Perhaps as a well intended precaution. But is there a reason why a child with CF would need a Medical Alert Bracelet (it is free). I don't really think one is necessary as my son has no Asthma, Diabetes or Allergies...
  10. G

    Medical Alert Bracelet

    So we got a pamphlet from my son's school for a free Medical Alert Bracelet. Perhaps as a well intended precaution. But is there a reason why a child with CF would need a Medical Alert Bracelet (it is free). I don't really think one is necessary as my son has no Asthma, Diabetes or Allergies...
  11. G

    Medical Alert Bracelet

    So we got a pamphlet from my son's school for a free Medical Alert Bracelet. Perhaps as a well intended precaution. But is there a reason why a child with CF would need a Medical Alert Bracelet (it is free). I don't really think one is necessary as my son has no Asthma, Diabetes or Allergies...
  12. G

    Does the sweat chloride number tell you anything?

    My son's sweat test was extremely high 130 but I often wonder if the result was because he hadn't had a bath in 10 days. Bad I hadn't washed my kid in 10 days but he was a newborn and I wasn't really comfortable with doing baths. I would of expected my son's numbers to be high but not that...
  13. G

    Does the sweat chloride number tell you anything?

    My son's sweat test was extremely high 130 but I often wonder if the result was because he hadn't had a bath in 10 days. Bad I hadn't washed my kid in 10 days but he was a newborn and I wasn't really comfortable with doing baths. I would of expected my son's numbers to be high but not that...
  14. G

    Does the sweat chloride number tell you anything?

    My son's sweat test was extremely high 130 but I often wonder if the result was because he hadn't had a bath in 10 days. Bad I hadn't washed my kid in 10 days but he was a newborn and I wasn't really comfortable with doing baths. I would of expected my son's numbers to be high but not that...
  15. G

    What is the norm of "Coughing" for CF

    Neither of my kids cough up stuff yet. They are 2 and 5 years old. My son is supposed to cough as part of his treatments which he does but nothing ever comes up. He doesn't need to cough unless he is sick with a cough or cold.
  16. G

    What is the norm of "Coughing" for CF

    Neither of my kids cough up stuff yet. They are 2 and 5 years old. My son is supposed to cough as part of his treatments which he does but nothing ever comes up. He doesn't need to cough unless he is sick with a cough or cold.
  17. G

    What is the norm of "Coughing" for CF

    Neither of my kids cough up stuff yet. They are 2 and 5 years old. My son is supposed to cough as part of his treatments which he does but nothing ever comes up. He doesn't need to cough unless he is sick with a cough or cold.
  18. G

    CF Handout for teachers

    Thanks for that I just printed this for my own child who begins Kindergarten today.
  19. G

    CF Handout for teachers

    Thanks for that I just printed this for my own child who begins Kindergarten today.
  20. G

    CF Handout for teachers

    Thanks for that I just printed this for my own child who begins Kindergarten today.
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