Search results
-
A
Confused and Frustrated
how about another sweat test?? have you repeated it??? maybe the first one was wrong, that happened with my kid the first time he did the test. -
A
Confused and Frustrated
how about another sweat test?? have you repeated it??? maybe the first one was wrong, that happened with my kid the first time he did the test. -
A
Just curious
My doctor told me that phase III for ataluren is going to last two more extra years, and that it could mean that there is something that needs to be fixed, but it also means that they think that it can be done, since they keep on spending lots of money on this drug. The only thing he knew for... -
A
Just curious
My doctor told me that phase III for ataluren is going to last two more extra years, and that it could mean that there is something that needs to be fixed, but it also means that they think that it can be done, since they keep on spending lots of money on this drug. The only thing he knew for... -
A
Just curious
My doctor told me that phase III for ataluren is going to last two more extra years, and that it could mean that there is something that needs to be fixed, but it also means that they think that it can be done, since they keep on spending lots of money on this drug. The only thing he knew for... -
A
You know you're a CF mom\dad\parent when......
I got one about babies:<br><br>... when your entire home is covered with white little balls of pancreatic enzimes, even the rooms where the baby doesnt eat or even enter!!<br><br>How many years does it take before the kids are able to swallow the entire capsule????<br> -
A
You know you're a CF mom\dad\parent when......
I got one about babies:<br><br>... when your entire home is covered with white little balls of pancreatic enzimes, even the rooms where the baby doesnt eat or even enter!!<br><br>How many years does it take before the kids are able to swallow the entire capsule????<br> -
A
You know you're a CF mom\dad\parent when......
I got one about babies:<br><br>... when your entire home is covered with white little balls of pancreatic enzimes, even the rooms where the baby doesnt eat or even enter!!<br><br>How many years does it take before the kids are able to swallow the entire capsule????<br> -
A
New Drug Candidates Discovered
Is it just me or it looks like lately we are getting more and more serious information full of good news??? -
A
My takeaway from the NACFC
I rather being enslaved to a huge pharm companie for the next 50 years than being dead in half that time. Let the companies find something good enough to keep CFers alive with a good quality of life, if they get rich selling health to CFers thats OK with me. -
A
My takeaway from the NACFC
I rather being enslaved to a huge pharm companie for the next 50 years than being dead in half that time. Let the companies find something good enough to keep CFers alive with a good quality of life, if they get rich selling health to CFers thats OK with me. -
A
My takeaway from the NACFC
I rather being enslaved to a huge pharm companie for the next 50 years than being dead in half that time. Let the companies find something good enough to keep CFers alive with a good quality of life, if they get rich selling health to CFers thats OK with me. -
A
Vertex 770 question
can´t find the abstracts about the combo. Can you please copy-paste the address for that?? Thank you!! -
A
Vertex 770 question
can´t find the abstracts about the combo. Can you please copy-paste the address for that?? Thank you!! -
A
Vertex 770 question
can´t find the abstracts about the combo. Can you please copy-paste the address for that?? <br /> <br />Thank you!! -
A
Vertex 770 question
In my opinion if Vertex is waiting for the Anaheim conference to make public the results of phase 2a for the combo it can only mean one thing: good news. No one would wait for an annual meeting just to say "sorry guys,it is not working", the waiting only makes sense if yo have something big to... -
A
Vertex 770 question
In my opinion if Vertex is waiting for the Anaheim conference to make public the results of phase 2a for the combo it can only mean one thing: good news. No one would wait for an annual meeting just to say "sorry guys,it is not working", the waiting only makes sense if yo have something big to...