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I'm afraid Jasey has hypoglycemia. The past two mornings she has slept in and had to be woke up. This is very rare for her. One morning we couldn't wake her up. I picked her up and she flopped around like a rag doll. I was going to call squad when she made a noise and started coming out of...

My dd teeth are bad she is only 6o. She has holes in her teeth from enamel defect. Her two front teeth are broke. Everything she eats sticks to her teeth like she has glue on them.

I was told 39 is the high end of normal. If you go to cuff.org I think it lists normal, borderline and positive results. My dd was 50 and we were told she is borderline or in the "grey".

8 yo with pancreatic insufficiency, fighting for genetic sequencing Julie, what about requesting nasal potential difference test? I really don't know how accurate it is. It might tell them how much cftr function he has.

Good to know its something that doesn't need treatment and not really anything to worry about. Is staph typical for everyone or just cf?

Can stap a be a precursor for pseudomonas? I've read two articles that lead me to believe in cf it can be a precursor to pseudomonas. Any thoughts?

We did with Jasey and loved her. She was very compassionate and helpful. If you do it hopefully you will have the same experience. Our nurse use to work at Cincinnati children's so she was familiar with some of Jasey's med problems.

Why are they doing treatments if he is 20 and has no respiratory symptoms? My daughter doesn't get treated for respiratory at all. She does PFTs and throat swabs every 3 months but no chest pt or antibiotics.

Why are they doing treatments if he is 20 and has no respiratory symptoms? My daughter doesn't get treated for respiratory at all. She does PFTs and throat swabs every 3 months but no chest pt or antibiotics.

My daughter always cultures H. Flu. I wonder why they haven't treated her for it?

My daughter always cultures H. Flu. I wonder why they haven't treated her for it?

My daughter was just in the hospital with c diff. It can be nasty! She had to have IV flagyle and Flagyl when she was home for another week. She has major GI issues. She had to have 28inches of colon removed due to chronic constipation. She is now on 1.5 squares of exlax a day with creon...

My daughter was just in the hospital with c diff. It can be nasty! She had to have IV flagyle and Flagyl when she was home for another week. She has major GI issues. She had to have 28inches of colon removed due to chronic constipation. She is now on 1.5 squares of exlax a day with creon...

Jasmin, my daughter is failure to thrive and had bowel resection. She had borderline sweat test. Only one cf mutation showed up on full genetic testing that I know of and it is a rare one. Her bowel tissue was tested for cftr function and it was positive for CF. good luck and keep pushing...

Jasmin, my daughter is failure to thrive and had bowel resection. She had borderline sweat test. Only one cf mutation showed up on full genetic testing that I know of and it is a rare one. Her bowel tissue was tested for cftr function and it was positive for CF. good luck and keep pushing...

So sorry to hear about your step daughter. I agree with above post. It sounds like there is definitely a chance he has cf.

So sorry to hear about your step daughter. I agree with above post. It sounds like there is definitely a chance he has cf.

Thanks for your help. Both her surgeon and cf doctor know about the blood. For the past few days her stool hasn't had any signs of blood so I'm hoping it was just viral or hemrhoid.

Thanks for your help. Both her surgeon and cf doctor know about the blood. For the past few days her stool hasn't had any signs of blood so I'm hoping it was just viral or hemrhoid.

Her stools are soft and at times loose. She's on exlax daily but the enzymes have made the biggest difference for her for the better. It just concerns me because she just had c diff colitis. She tested negative for it this time. Now I'll be paranoid over her getting that again!