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  1. M

    Jasey was in hospital wed thru fri for c-diff colitis

    Is c-diff common with cf?
  2. M

    2 children possible cf

    My daughters main symptoms are chronic constipation and ftt. She had borderline sweats. She had to have bowel resection last June. She is now on enzymes and they have made a huge difference! Her sister is now getting tested because of same symptoms.
  3. M

    2 children possible cf

    My daughters main symptoms are chronic constipation and ftt. She had borderline sweats. She had to have bowel resection last June. She is now on enzymes and they have made a huge difference! Her sister is now getting tested because of same symptoms.
  4. M

    Other daughter is getting tested.

    Thanks!
  5. M

    Other daughter is getting tested.

    Thanks!
  6. M

    Other daughter is getting tested.

    Thanks Beccamom!! I always appreciate your support!!
  7. M

    Other daughter is getting tested.

    Thanks Beccamom!! I always appreciate your support!!
  8. M

    Culture results - strep and H. Influenza

    Jasey has cultured H influenza the past two times and dr doesn't seem concerned about it. I guess because she's not having any symptoms with it?
  9. M

    Culture results - strep and H. Influenza

    Jasey has cultured H influenza the past two times and dr doesn't seem concerned about it. I guess because she's not having any symptoms with it?
  10. M

    Other daughter is getting tested.

    The CF specialist is going to test my other daughter (McKenzie) colon for the decreased CFTR function. She is on 8.5 squares a day to have a bm, constant abd pain and numerous URI since infancy. She is 11 yo and has lost 10 pounds in the last few months. Her sweat tests were negative; the...
  11. M

    Other daughter is getting tested.

    The CF specialist is going to test my other daughter (McKenzie) colon for the decreased CFTR function. She is on 8.5 squares a day to have a bm, constant abd pain and numerous URI since infancy. She is 11 yo and has lost 10 pounds in the last few months. Her sweat tests were negative; the...
  12. M

    6 week wait time for sweat test?

    We rec'd sweat test results the same day and genetic testing results in three weeks. Hope you get answers soon.
  13. M

    6 week wait time for sweat test?

    We rec'd sweat test results the same day and genetic testing results in three weeks. Hope you get answers soon.
  14. M

    Back into the hospital tonight

    My heart is breaking for you. Any illness that takes a child's life so young is terrible. My niece passed a way when she was ten from leukemia. It is devastating! Your family is in my prayers.
  15. M

    Back into the hospital tonight

    My heart is breaking for you. Any illness that takes a child's life so young is terrible. My niece passed a way when she was ten from leukemia. It is devastating! Your family is in my prayers.
  16. M

    Update with Jasey

    Hi, just wanted to give an update, haven't been on here for a while. My other daughter has been sick for months. Jasey is still growing and gaining on enzymes, however, she is still ftt but overall doing good.
  17. M

    Update with Jasey

    Hi, just wanted to give an update, haven't been on here for a while. My other daughter has been sick for months. Jasey is still growing and gaining on enzymes, however, she is still ftt but overall doing good.
  18. M

    Not diagnosed or been to the doctor, just need advice

    <br>My daughter was tested because of chronic constipation and ftt. I guess in some people chronic constipation can be a symptom. She had 28 inches of colon removed and still battled constipation until she started enzymes. Once she started enzymes she went from 5 squares of exlax per day to 2.5...
  19. M

    Not diagnosed or been to the doctor, just need advice

    <br>My daughter was tested because of chronic constipation and ftt. I guess in some people chronic constipation can be a symptom. She had 28 inches of colon removed and still battled constipation until she started enzymes. Once she started enzymes she went from 5 squares of exlax per day to 2.5...
  20. M

    Not diagnosed or been to the doctor, just need advice

    <br>My daughter was tested because of chronic constipation and ftt. I guess in some people chronic constipation can be a symptom. She had 28 inches of colon removed and still battled constipation until she started enzymes. Once she started enzymes she went from 5 squares of exlax per day to 2.5...
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