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Yes that would be a double boiler. ITs great for melting chocolate. But the top pan is still a metal pan and if the thing sinks, it will touch the bottom of the top pan as well. However, the idea is that the top pan doesn't get as hot. Still sounds silly. I will experiment!

Someone please tell me why an autoclave doesn't come with a CF diagnosis?

I've ordered two of them.....I will experiment and report back. Even if you let them touch the bottom of the pot, Aboveall, that seems a bit touchy to me. It's gonna happen. So along with shay's experience, it seems steam disinfection is easiest if you don't want to find yourself without one...

Genotype alone is not a predictor of phenotype. Not all people with the same genetic mutations have the same symptoms or disease course as others with that genetic mutation. This has been documented for years. So those taking the same drug will not respond in a manner that's identical to...

Saintoffeon. Heaven bless. You're having a really hard time and we so appreciate your posts. Has your team given you any opinion on all this? Have you talked to Vertex to ask about your side effects and what they might anticipate as the future course? Here's praying things get better fast ...

Jswans - thanks for your post. Do you know if you were on the currently recommended dosage? Or were you in a trial with an unknown dosage? Just wondering . . . . looking for those variables!

Great summary, Ethan. Thanks so much for spelling out these basics for us all. And yes, from my understanding, trending is one of the most, if not THE most, important factor. Which way is your lung function going and at what speed. Different numbers for different people based on a host of...

Oh Ugh!!! I imagine you have Pari on the phone......we're you able to boil it without it sitting on the bottom of the pot? (In other words did it float or.....?)

Hard water I suspect. Add some distilled white vinegar to the wate before boiling. I add around 2 or 3 tablespoon to around 3 quarts water.....quality brand like Heinz. We get that all the time even with the nebulizers.

Sanitize generally means it kills some - only some - of all bugs. If your dishwasher reaches 158 degrees for ..., I think it's 20 minutes, .... then it's capable of disinfecting. DO check those times. Otherwise it's a great first wash with soap and water which is needed before sterilizing...

Thank you Pari!

AHA! You did it! Great job. We now have a spacer we can disinfect! Wonderful.

They have so many sites, but I can't read Russian or Japanese, etc. to see what those sites say. I suspect your right - it's an FDA thing. But frankly, unless they are made with different materials, I suspect it can be disinfected just like our posters have said!

It the site for Germany! I did not navigate there. I went to www.pari.com. Interesting. So at least our German or perhaps European members can sterilize! Let us know what Pari says......

Yes AboveAll I had noticed the odd file name! But what gives me pause is the failure of the CF Clinic or RTs to mention this, and the failure to include these instructions in the materials for patients. So as I said.....check with your RT or Clinic to see if there's something about all this...

A P.S. The second link I posted above, which has instructions for the Vortex in three different languages, contains a cautionary note as follows: CAUTION – The VORTEX® can be disinfected up to 60 times as described in chapter 4. If you use the device every day, replace all components of your...

Hi all. I have spent several days now researching and reading on this issue. Thank you AboveAll for a great question that has rattled around in my brain but which I never really sought to resolve. My conclusion, first of all, at this point is that I want a Pari Vortex. It can be...

To me, it's simply fascinating to see such immediate results. . . . Can someone provide me with a little more information to help me understand the mechanism at work here? What is changing that causes the almostimmediate production of so much mucous, the difficulty with breathing, the...

That's a wonderfully detailed report Saintoffeon. And it's evident you have a great attitude - looking for the connections, cause and effect, and seeing the benefits while still noting the difficulties. I look forward to hearing more......

Bless you Dot - that's great info! So for those who use a baby bottle sterilizer, that sounds perfect!