Search results

  1. R

    Make a Wish?

    My daughter Hayley is 6 years old and we are going on her MAW trip in November. She wished to go to Disney World and we are staying at Give Kids the World. We can't wait! We got to pick our dates and purposely picked dates in the fall so the weather would be cooler and not so humid for...
  2. R

    Make a Wish?

    My daughter Hayley is 6 years old and we are going on her MAW trip in November. She wished to go to Disney World and we are staying at Give Kids the World. We can't wait! We got to pick our dates and purposely picked dates in the fall so the weather would be cooler and not so humid for...
  3. R

    cleaning nebs

    When on vacation we use a Hot Pot, that boils water right in the pot. I got it a Target for about $15. I personally think that boiling is the only way to get the nebs completely sterile. I do not trust the bags or the microwave sterilizers. Just my opinion.
  4. R

    cleaning nebs

    When on vacation we use a Hot Pot, that boils water right in the pot. I got it a Target for about $15. I personally think that boiling is the only way to get the nebs completely sterile. I do not trust the bags or the microwave sterilizers. Just my opinion.
  5. R

    cleaning nebs

    When on vacation we use a Hot Pot, that boils water right in the pot. I got it a Target for about $15. I personally think that boiling is the only way to get the nebs completely sterile. I do not trust the bags or the microwave sterilizers. Just my opinion.
  6. R

    CF Postage Stamp

    Hi Amanda! I will join the facebookd group ASAP. I did not know you were over here too! I just met you on the DIS Boards Make A Wish Trip Thread. I have been on this forum for several years, but mostly lurk! Glad to see you over here! I hope Piper is still doing better!
  7. R

    CF Postage Stamp

    Hi Amanda! I will join the facebookd group ASAP. I did not know you were over here too! I just met you on the DIS Boards Make A Wish Trip Thread. I have been on this forum for several years, but mostly lurk! Glad to see you over here! I hope Piper is still doing better!
  8. R

    CF Postage Stamp

    Hi Amanda! <br /> <br />I will join the facebookd group ASAP. I did not know you were over here too! I just met you on the DIS Boards Make A Wish Trip Thread. I have been on this forum for several years, but mostly lurk! Glad to see you over here! I hope Piper is still doing better! <br />...
  9. R

    What do docs consider when admitting for iv antibiotics?

    They definitely consider the PFT's. My daughter is 6 years old as well and has been doing PFT's for about a year and a half and I know she still does not have the technique down for doing it completely properly. She still does not blow out fast enough or long enough for totally valid results...
  10. R

    What do docs consider when admitting for iv antibiotics?

    They definitely consider the PFT's. My daughter is 6 years old as well and has been doing PFT's for about a year and a half and I know she still does not have the technique down for doing it completely properly. She still does not blow out fast enough or long enough for totally valid results...
  11. R

    What do docs consider when admitting for iv antibiotics?

    They definitely consider the PFT's. My daughter is 6 years old as well and has been doing PFT's for about a year and a half and I know she still does not have the technique down for doing it completely properly. She still does not blow out fast enough or long enough for totally valid results...
  12. R

    What do docs consider when admitting for iv antibiotics?

    They definitely consider the PFT's. My daughter is 6 years old as well and has been doing PFT's for about a year and a half and I know she still does not have the technique down for doing it completely properly. She still does not blow out fast enough or long enough for totally valid results...
  13. R

    What do docs consider when admitting for iv antibiotics?

    They definitely consider the PFT's. My daughter is 6 years old as well and has been doing PFT's for about a year and a half and I know she still does not have the technique down for doing it completely properly. She still does not blow out fast enough or long enough for totally valid results...
  14. R

    Make a Wish

    We actually just started the process for our daughter. The paperwork has been sent by Make A Wish to our doctor and we are waiting to hear back from them. We live in Indiana and I know of other CF Families that have been granted wishes with children of young ages. I had always intended to...
  15. R

    Make a Wish

    We actually just started the process for our daughter. The paperwork has been sent by Make A Wish to our doctor and we are waiting to hear back from them. We live in Indiana and I know of other CF Families that have been granted wishes with children of young ages. I had always intended to...
  16. R

    Make a Wish

    We actually just started the process for our daughter. The paperwork has been sent by Make A Wish to our doctor and we are waiting to hear back from them. We live in Indiana and I know of other CF Families that have been granted wishes with children of young ages. I had always intended to...
  17. R

    Make a Wish

    We actually just started the process for our daughter. The paperwork has been sent by Make A Wish to our doctor and we are waiting to hear back from them. We live in Indiana and I know of other CF Families that have been granted wishes with children of young ages. I had always intended to...
  18. R

    Make a Wish

    We actually just started the process for our daughter. The paperwork has been sent by Make A Wish to our doctor and we are waiting to hear back from them. We live in Indiana and I know of other CF Families that have been granted wishes with children of young ages. I had always intended to...
  19. R

    How does your clinic work?

    Sorry Jack is sick! Hayley is in the hospital with pneumonia right now too! Our clinic is smaller and there are only 2 doctors, who really don't like each other from what I have heard. We only see our doctor all the time and that is the way I like it. He does all the procedures. If we are...
  20. R

    How does your clinic work?

    Sorry Jack is sick! Hayley is in the hospital with pneumonia right now too! Our clinic is smaller and there are only 2 doctors, who really don't like each other from what I have heard. We only see our doctor all the time and that is the way I like it. He does all the procedures. If we are...
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