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  1. T

    So discouraged- UPDATE

    So discouraged! yea i would suggest hts. has he tried old school mucomyst? he used to grow an NTM right? could it be in there and not showing up on cultures? I hate reading this because its discouraging and scary. I hope you find an answer or a suggestion that is the solution!
  2. T

    So discouraged- UPDATE

    So discouraged! yea i would suggest hts. has he tried old school mucomyst? <br />he used to grow an NTM right? could it be in there and not showing up on cultures? <br /> <br />I hate reading this because its discouraging and scary. I hope you find an answer or a suggestion that is the solution!
  3. T

    living alone and being sick

    For grocery delivery its peapod.com, i saw it fb from the spoonies page, but you dont look sick... I tried it but isnt in my area yet, i think you are midwest, east coast and seemed to bemore available over there, good luck!
  4. T

    living alone and being sick

    For grocery delivery its peapod.com, i saw it fb from the spoonies page, but you dont look sick... I tried it but isnt in my area yet, i think you are midwest, east coast and seemed to bemore available over there, good luck!
  5. T

    living alone and being sick

    For grocery delivery its peapod.com, i saw it fb from the spoonies page, but you dont look sick... I tried it but isnt in my area yet, i think you are midwest, east coast and seemed to bemore available over there, good luck!
  6. T

    living alone and being sick

    I haven't read the most recent posts, but I just rememberd I wanted to ask you about grocery delievery? I think there is a website... peapod or something like that and you can search your city... also if you have Safeways where you live some stores offer delivery there too, and its only like...
  7. T

    living alone and being sick

    I haven't read the most recent posts, but I just rememberd I wanted to ask you about grocery delievery? I think there is a website... peapod or something like that and you can search your city... also if you have Safeways where you live some stores offer delivery there too, and its only like...
  8. T

    living alone and being sick

    I haven't read the most recent posts, but I just rememberd I wanted to ask you about grocery delievery? I think there is a website... peapod or something like that and you can search your city... also if you have Safeways where you live some stores offer delivery there too, and its only like...
  9. T

    MAC, or something....

    I have long term treatments to treat my b. cepacia, almost as long as when I have been treated for M. Abscessus. I find I need longer times even for the b. cepacia.
  10. T

    MAC, or something....

    I have long term treatments to treat my b. cepacia, almost as long as when I have been treated for M. Abscessus. I find I need longer times even for the b. cepacia.
  11. T

    MAC, or something....

    I have long term treatments to treat my b. cepacia, almost as long as when I have been treated for M. Abscessus. I find I need longer times even for the b. cepacia. <br />
  12. T

    MAC, or something....

    hmm. maybe the other bug is overwhelming the MAC (b/c I've always believed it is not as harder and can be crowded) and so this other bug is what is causing problems. I have b. cepacia and typically when I do treatment for one, I end up having to follow up with treatment for the other b/c by...
  13. T

    MAC, or something....

    hmm. maybe the other bug is overwhelming the MAC (b/c I've always believed it is not as harder and can be crowded) and so this other bug is what is causing problems. I have b. cepacia and typically when I do treatment for one, I end up having to follow up with treatment for the other b/c by...
  14. T

    MAC, or something....

    hmm. maybe the other bug is overwhelming the MAC (b/c I've always believed it is not as harder and can be crowded) and so this other bug is what is causing problems. I have b. cepacia and typically when I do treatment for one, I end up having to follow up with treatment for the other b/c by...
  15. T

    please help make hospital stay better

    Wow. LouLou, love those suggestions, mainly b/c its so fucused on being clean!!! And yours cf4life... like the digital picture screen and the oversized hospital bed <img src="i/expressions/face-icon-small-smile.gif" border="0"> (they should b/c of overweight patients...) as well as an extra...
  16. T

    please help make hospital stay better

    Wow. LouLou, love those suggestions, mainly b/c its so fucused on being clean!!! And yours cf4life... like the digital picture screen and the oversized hospital bed <img src="i/expressions/face-icon-small-smile.gif" border="0"> (they should b/c of overweight patients...) as well as an extra...
  17. T

    please help make hospital stay better

    Wow. LouLou, love those suggestions, mainly b/c its so fucused on being clean!!! <br /> <br />And yours cf4life... like the digital picture screen and the oversized hospital bed <img src="i/expressions/face-icon-small-smile.gif" border="0"> (they should b/c of overweight patients...) as well as...
  18. T

    Perceptions of CF

    I think this is a great topic. I know some cf'ers that hate any negativity. I dont know if you've ever seen the Canadian CF ads, that say its like drowning on the inside? Some cf'ers get really outraged. I personally think, that its okay. These are the cf'ers that feel like they control their...
  19. T

    Perceptions of CF

    I think this is a great topic. I know some cf'ers that hate any negativity. I dont know if you've ever seen the Canadian CF ads, that say its like drowning on the inside? Some cf'ers get really outraged. I personally think, that its okay. These are the cf'ers that feel like they control their...
  20. T

    Perceptions of CF

    I think this is a great topic. <br /> <br />I know some cf'ers that hate any negativity. I dont know if you've ever seen the Canadian CF ads, that say its like drowning on the inside? Some cf'ers get really outraged. I personally think, that its okay. These are the cf'ers that feel like they...
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