Search results

  1. R

    WHat kind of tests/questions do they ask ?

    Here's a quick run down on what happened after I got "the call" <br />It was about 11am, they had me drive up to Cleveland which is 4 hours away. By the time we got on the road and actually got there, it was 4pm. At that point they had me change into a gown and got 2 IVs started in my hands...
  2. R

    Still hurting

    When i had the PEG it was almost always tender. After I got my button the pain lessened since there wasn't all of that extra tubing pulling at the site. Best of luck and hope the pain goes away soon!
  3. R

    Still hurting

    When i had the PEG it was almost always tender. After I got my button the pain lessened since there wasn't all of that extra tubing pulling at the site. Best of luck and hope the pain goes away soon!
  4. R

    Still hurting

    When i had the PEG it was almost always tender. After I got my button the pain lessened since there wasn't all of that extra tubing pulling at the site. Best of luck and hope the pain goes away soon!
  5. R

    Still hurting

    When i had the PEG it was almost always tender. After I got my button the pain lessened since there wasn't all of that extra tubing pulling at the site. Best of luck and hope the pain goes away soon!
  6. R

    Still hurting

    When i had the PEG it was almost always tender. After I got my button the pain lessened since there wasn't all of that extra tubing pulling at the site. Best of luck and hope the pain goes away soon!
  7. R

    Inhaled Cyclosporine / Pulminiq

    I've heard of it. Actually, I'm trying to get on the study right now. At Cleveland they're taking on a handful of patients and I'm crossing my fingers to be one of them! Heck, what's one inhaled thing compared to what all of us did pre-tx?! Pitt was the one that did the original study but...
  8. R

    Inhaled Cyclosporine / Pulminiq

    I've heard of it. Actually, I'm trying to get on the study right now. At Cleveland they're taking on a handful of patients and I'm crossing my fingers to be one of them! Heck, what's one inhaled thing compared to what all of us did pre-tx?! Pitt was the one that did the original study but...
  9. R

    Inhaled Cyclosporine / Pulminiq

    I've heard of it. Actually, I'm trying to get on the study right now. At Cleveland they're taking on a handful of patients and I'm crossing my fingers to be one of them! Heck, what's one inhaled thing compared to what all of us did pre-tx?! Pitt was the one that did the original study but...
  10. R

    Inhaled Cyclosporine / Pulminiq

    I've heard of it. Actually, I'm trying to get on the study right now. At Cleveland they're taking on a handful of patients and I'm crossing my fingers to be one of them! Heck, what's one inhaled thing compared to what all of us did pre-tx?! Pitt was the one that did the original study but...
  11. R

    Inhaled Cyclosporine / Pulminiq

    I've heard of it. Actually, I'm trying to get on the study right now. At Cleveland they're taking on a handful of patients and I'm crossing my fingers to be one of them! Heck, what's one inhaled thing compared to what all of us did pre-tx?! <br /> <br />Pitt was the one that did the...
  12. R

    unsure if ready for TX

    I am now one month post transplant and I have to say it's so totally worth it!! That being said, I wasn't sure what I wanted to do when I went for my evaluation last June. My FEV1 was roughly 25% give or take but I was on FREQUENT IVs. We're talking I could maybe get a month off the IVs...
  13. R

    unsure if ready for TX

    I am now one month post transplant and I have to say it's so totally worth it!! That being said, I wasn't sure what I wanted to do when I went for my evaluation last June. My FEV1 was roughly 25% give or take but I was on FREQUENT IVs. We're talking I could maybe get a month off the IVs...
  14. R

    unsure if ready for TX

    I am now one month post transplant and I have to say it's so totally worth it!! That being said, I wasn't sure what I wanted to do when I went for my evaluation last June. My FEV1 was roughly 25% give or take but I was on FREQUENT IVs. We're talking I could maybe get a month off the IVs...
  15. R

    unsure if ready for TX

    I am now one month post transplant and I have to say it's so totally worth it!! That being said, I wasn't sure what I wanted to do when I went for my evaluation last June. My FEV1 was roughly 25% give or take but I was on FREQUENT IVs. We're talking I could maybe get a month off the IVs...
  16. R

    unsure if ready for TX

    I am now one month post transplant and I have to say it's so totally worth it!! That being said, I wasn't sure what I wanted to do when I went for my evaluation last June. My FEV1 was roughly 25% give or take but I was on FREQUENT IVs. We're talking I could maybe get a month off the IVs...
  17. R

    The Transplant Decision ... (to be or not to be?)

    I'm just going to echo what everyone else is saying in that it is a very personal decision. Only you can make this choice for you. That being said, you need to make sure you have a strong support system to help you after the surgery. I'm a little over 2 weeks out and I don't know how I...
  18. R

    The Transplant Decision ... (to be or not to be?)

    I'm just going to echo what everyone else is saying in that it is a very personal decision. Only you can make this choice for you. That being said, you need to make sure you have a strong support system to help you after the surgery. I'm a little over 2 weeks out and I don't know how I...
  19. R

    The Transplant Decision ... (to be or not to be?)

    I'm just going to echo what everyone else is saying in that it is a very personal decision. Only you can make this choice for you. That being said, you need to make sure you have a strong support system to help you after the surgery. I'm a little over 2 weeks out and I don't know how I...
  20. R

    The Transplant Decision ... (to be or not to be?)

    I'm just going to echo what everyone else is saying in that it is a very personal decision. Only you can make this choice for you. That being said, you need to make sure you have a strong support system to help you after the surgery. I'm a little over 2 weeks out and I don't know how I...
Top