Search results

  1. L

    pre-trans quality of life

    Hi Jason, <br />I have not been transplanted yet, but I've been listed since January 2011. I basically decided it was time because of a few things: I had to stop working in order to stop myself from spiraling down into illness that I couldn't come out of. I stopped eating because I didn't...
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    lobectomy

    I had an upper right lobectomy in Nov 2009 at Barnes in St Louis. I was back to work by January 16 2010. My right upper lobe had a baseball sized aspargilis fungus ball that caused constant hymoptysis. I also was VERY fatigued and had hair loss before the surgery. This fungus ball was pea size...
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    lobectomy

    I had an upper right lobectomy in Nov 2009 at Barnes in St Louis. I was back to work by January 16 2010. My right upper lobe had a baseball sized aspargilis fungus ball that caused constant hymoptysis. I also was VERY fatigued and had hair loss before the surgery. This fungus ball was pea size...
  4. L

    lobectomy

    I had an upper right lobectomy in Nov 2009 at Barnes in St Louis. I was back to work by January 16 2010. My right upper lobe had a baseball sized aspargilis fungus ball that caused constant hymoptysis. I also was VERY fatigued and had hair loss before the surgery. This fungus ball was pea size...
  5. L

    What is a VEST??

    In my opinion, the Vest is good for convenience sake. If I had my choice, I would take good manual CPT over the vest anyday. I get way more up when my husband and mom do CPT and I remain clearer for longer periods of the day, as well as sleep better at night after manual CPT versus the vest...
  6. L

    What is a VEST??

    In my opinion, the Vest is good for convenience sake. If I had my choice, I would take good manual CPT over the vest anyday. I get way more up when my husband and mom do CPT and I remain clearer for longer periods of the day, as well as sleep better at night after manual CPT versus the vest...
  7. L

    What is a VEST??

    In my opinion, the Vest is good for convenience sake. If I had my choice, I would take good manual CPT over the vest anyday. I get way more up when my husband and mom do CPT and I remain clearer for longer periods of the day, as well as sleep better at night after manual CPT versus the vest...
  8. L

    nebulizer question

    Mobilaire by Invacare....cuts my Tobi and HTS to < 20 mintues....fastest machine I've used.
  9. L

    nebulizer question

    Mobilaire by Invacare....cuts my Tobi and HTS to < 20 mintues....fastest machine I've used.
  10. L

    nebulizer question

    Mobilaire by Invacare....cuts my Tobi and HTS to < 20 mintues....fastest machine I've used.
  11. L

    Adult feeding tube placement consideration. Questions!

    Oh I should add...I have an insulin pump, so I don't have to worry about manually bolusing myself overnight for my CFRD =) I was able to order the sensors, which talk to the pump and take glucose readings every 5 minutes, so my Endo was able to get a bolusing plan for overnight programmed into...
  12. L

    Adult feeding tube placement consideration. Questions!

    Oh I should add...I have an insulin pump, so I don't have to worry about manually bolusing myself overnight for my CFRD =) I was able to order the sensors, which talk to the pump and take glucose readings every 5 minutes, so my Endo was able to get a bolusing plan for overnight programmed into...
  13. L

    Adult feeding tube placement consideration. Questions!

    Oh I should add...I have an insulin pump, so I don't have to worry about manually bolusing myself overnight for my CFRD =) I was able to order the sensors, which talk to the pump and take glucose readings every 5 minutes, so my Endo was able to get a bolusing plan for overnight programmed into...
  14. L

    Salt Caves

    I've been...I was bored and it had no effect. Stick with Hypertonic Saline =)
  15. L

    Salt Caves

    I've been...I was bored and it had no effect. Stick with Hypertonic Saline =)
  16. L

    Salt Caves

    I've been...I was bored and it had no effect. Stick with Hypertonic Saline =)
  17. L

    Adult feeding tube placement consideration. Questions!

    Hi ladies I am 30, I have 25% lung function, and I am 5'5" and was down to 96 lbs. before I decided to have the tube placed. The reason I had it placed is it was too stressful trying to eat enough during the day to maintain weight, let alone gain it, and it worried me all day long. After I...
  18. L

    Adult feeding tube placement consideration. Questions!

    Hi ladies I am 30, I have 25% lung function, and I am 5'5" and was down to 96 lbs. before I decided to have the tube placed. The reason I had it placed is it was too stressful trying to eat enough during the day to maintain weight, let alone gain it, and it worried me all day long. After I...
  19. L

    Adult feeding tube placement consideration. Questions!

    Hi ladies <br />I am 30, I have 25% lung function, and I am 5'5" and was down to 96 lbs. before I decided to have the tube placed. The reason I had it placed is it was too stressful trying to eat enough during the day to maintain weight, let alone gain it, and it worried me all day long...
  20. L

    enzyme

    Stefi, what does your doctor say about the new symptom of greasy stool? Does he give any reasoning why it's fine for your child to have greasy stool and why enzymes should not be increased to combat it? I understand what Caro46 is saying, however, it seems there should be some solution if your...
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