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  1. R

    How to explain CF to your coworkers...or do you?

    Wait till you kill it in the restroom, like the one the boss uses. Not a good time to have the worst smelling stools ever produced. THen what do they talk about and avoid you. I am still recoiling from that one. One real doosey in the bath room they will talk less about the cough. [ Just...
  2. R

    Moving to Pasadena

    I go to the USC CF Adult Clinic. Really the only and best CF clinic in So Cal. You would be only 15 minutes away from there. http://cf.keckmedicine.org/
  3. R

    Surprising Results with Essential Oils! Give it a Go!

    http://www.potentiate.info/ SOme have added curcumin and soy genistien
  4. R

    Jobs for people with CF?

    First question is what are you good at and what do you like to do? What is the status of your current health? What can you do to be healthier and thus work more or differently. What hobbies, interests or activities have you done in the past. Unless you have been sick your whole life and you are...
  5. R

    Smoking Pot/RSO Oil

    Add Vitamin D to that mix. Without it we are in trouble.
  6. R

    Anyone else have reactive hypoglycemia?

    Are people having this without taking insulin? If you are on insulin then you have to adjust how much you are taking. I take insulin and have this problem, so curious to see why it is so prevalent with CFRD. There is an issue with carb malabsorbtion too. you'll have to google it
  7. R

    Gluten free? Anybody know anything?

    There is a gluten sensitivity issue that most suffer from, someone does not need to have celiac to be affected. There is no test for gluten sensitivity. You can take a IGE test (antibodies)and a genetic test for celiac. We also suffer from carb digestion issues, poorly digested carbs give us...
  8. R

    malabsorption and belly fat

    yep skinny fat. i just recently lost alot of weight and damn belly fat lingers.
  9. R

    Pseudos exacerbation :(

    Yeah me too, never goes away, lately really congested and crappy
  10. R

    Gluten free? Anybody know anything?

    I am gluten free and it made all the difference for me. My theory is most Cf's have a problem with gluten ( like over 50% of the population) with CF though it gets lost in the chaos of all our other problems. Read This... http://www.glutensolutions.com/dark-side-of-wheat.html I am in LA too ...
  11. R

    Advice / Suggestions please - Chronic GI Symptoms - Docs don't know what's going on

    It seems you have run the gauntlet of tests and modalities to treat your issues, I struggle and have struggled with many of the same. Here are my 2cents worth of what has worked for me. 1. Liver massage ( having some scarring and inflammation with liver, i massage my liver and pancrease...
  12. R

    Anyone in Canada CF clinic that treats SMG

    New approach to treating cystic fibrosis lung infection shows promiseSep 22, 2008Researchers at the University of Calgary have found a new method of fighting severe lung infections in people with cystic fibrosis (CF). These findings are published inProceedings of the National Academy of Science...
  13. R

    New drug target found for cystic fibrosis lung disease

    New drug target found for cystic fibrosis lung diseaseVancouver researchers have discovered the cellular pathway that causes lung-damaging inflammation in cystic fibrosis (CF), and that reducing the pathway's activity also decreases inflammation. The finding offers a potential new drug target...
  14. R

    Researchers discover new treatment to cure MRSA infection

    Researchers discover new treatment to cure MRSA infectionby Angela Herring Professor Kim Lewis and his team developed a novel approach for treating chronic infections, which account for more than 20,000 deaths in the U.S. each year. Credit: Mary Knox Merrill.Recent work from University...
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    I want kids and I'm 18

    If you are 18, what is the hurry, get your life together before you have the responsibility of a kid. Can you afford your care plus a kid? Dont let your ego get in the way of making good decisions. Think of the well being of the child before your own knee jerk reaction. I want a kid is a big...
  16. R

    Trying to gain weight -- am I doing everything?

    THis is a struggle we all deal with. I am once again making an effort to gain weight. Sometimes we all need a push and some ideas. Here is my weight gain manifesto. For anyone that is interested and to help my keep motivated and on track. 1. Decide that you have to do something different than...
  17. R

    does anyone take oil of oregano every day

    Curious to see how you used lavender. as an oil or pill
  18. R

    Bacterial food web may be key to cystic fibrosis

    Bacterial food web may be key to cystic fibrosis By Anne Ju Cystic fibrosis patients suffer from chronic bacterial infections and thick mucous in their lungs, due largely to a combination of microbial infections and resulting inflammation. A common pathogen, Pseudomonas aeruginosa, which can lay...
  19. R

    Night Sweats

    maybe i am pre "man-apausal" because i get night sweats frequently too ( M, 43yo) I get them frequently, I usually attribute it to blood sugars, but not consistently. So it is troublesome and not sure what is the cause except for it is the bodys reaction to infection and what not.
  20. R

    Bad tasting oral antibiotics....

    Well she's got spunk, gotta love that. I am 43 and have the same reaction. The quote about flagyl is so true - the worst tasting, cringe, gag taste out there I think that is what kills it, sheer disgustingness. Could you dilute the med to an amount she would drink in say tomato juice, the...
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