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  1. J

    CF walk

    At our walk al CFers got flower leis. But you had to know to ask for them. Nice and subtle. Even Jess wore hers (As a bracelet, but it still counts)
  2. J

    CF walk

    At our walk al CFers got flower leis. But you had to know to ask for them. Nice and subtle. Even Jess wore hers (As a bracelet, but it still counts)
  3. J

    CF walk

    At our walk al CFers got flower leis. But you had to know to ask for them. Nice and subtle. Even Jess wore hers (As a bracelet, but it still counts)
  4. J

    Great Strides Walks

    When Jess participated in the walk this year they had those Leis that you can buy at the party store. only people with CF got them so they knew to keep their distance. it was a very subtle way for them to know who had CF with too much embarrassment.
  5. J

    Great Strides Walks

    When Jess participated in the walk this year they had those Leis that you can buy at the party store. only people with CF got them so they knew to keep their distance. it was a very subtle way for them to know who had CF with too much embarrassment.
  6. J

    Great Strides Walks

    When Jess participated in the walk this year they had those Leis that you can buy at the party store. only people with CF got them so they knew to keep their distance. <br />it was a very subtle way for them to know who had CF with too much embarrassment.
  7. J

    Should the Vest make my daughter cough?

    My daughter has no baseline cough and when she uses her vest it does not induce a cough. BUT. if she does her vest with HTS for 30 mins (vest, HTS does not last 30 mins) and then takes a very hot shower, sometimes she is able to bring up stuff then. theory is that the vest loosens everything...
  8. J

    Should the Vest make my daughter cough?

    My daughter has no baseline cough and when she uses her vest it does not induce a cough. BUT. if she does her vest with HTS for 30 mins (vest, HTS does not last 30 mins) and then takes a very hot shower, sometimes she is able to bring up stuff then. theory is that the vest loosens everything...
  9. J

    Should the Vest make my daughter cough?

    My daughter has no baseline cough and when she uses her vest it does not induce a cough. <br />BUT. <br />if she does her vest with HTS for 30 mins (vest, HTS does not last 30 mins) and then takes a very hot shower, sometimes she is able to bring up stuff then. <br />theory is that the vest...
  10. J

    How are you treating your MRSA?

    My daughter cultured MRSA for the first time about 5 years ago. nothing worked until we tried Zyvox (YUK, I'll spare you the details) this did the trick. now if she has any cough we treat right away with Bactrim. haven't needed the Zyvox again. Quite frankly, since the MRSA diagnosis she...
  11. J

    How are you treating your MRSA?

    My daughter cultured MRSA for the first time about 5 years ago. nothing worked until we tried Zyvox (YUK, I'll spare you the details) this did the trick. now if she has any cough we treat right away with Bactrim. haven't needed the Zyvox again. Quite frankly, since the MRSA diagnosis she...
  12. J

    How are you treating your MRSA?

    My daughter cultured MRSA for the first time about 5 years ago. nothing worked until we tried Zyvox (YUK, I'll spare you the details) this did the trick. <br /> <br />now if she has any cough we treat right away with Bactrim. haven't needed the Zyvox again. <br /> <br />Quite frankly, since...
  13. J

    Snow shoveling

    I sent my DD out to shovel snow. I know I was in a sweat after only 10 minutes and we were out there for 45 mins or so. I'm thinking this could replace her vest therapy for at least one session a day similar to when she has soccer or lacrosse. thoughts?
  14. J

    Snow shoveling

    I sent my DD out to shovel snow. I know I was in a sweat after only 10 minutes and we were out there for 45 mins or so. I'm thinking this could replace her vest therapy for at least one session a day similar to when she has soccer or lacrosse. thoughts?
  15. J

    Snow shoveling

    I sent my DD out to shovel snow. I know I was in a sweat after only 10 minutes and we were out there for 45 mins or so. <br />I'm thinking this could replace her vest therapy for at least one session a day similar to when she has soccer or lacrosse. <br /> <br />thoughts?
  16. J

    Tools and Tips for Visiting Disney with CF

    you shouldn't 'need' a doctor's note since they are not allowed (legally) to ask you to prove your disability, but a doctor's note could not hurt. We were asked what her 'limitations' were. Maybe just to check we were not trying to buffalo them. This also works at Universal, although not...
  17. J

    Tools and Tips for Visiting Disney with CF

    you shouldn't 'need' a doctor's note since they are not allowed (legally) to ask you to prove your disability, but a doctor's note could not hurt. We were asked what her 'limitations' were. Maybe just to check we were not trying to buffalo them. This also works at Universal, although not...
  18. J

    Tools and Tips for Visiting Disney with CF

    you shouldn't 'need' a doctor's note since they are not allowed (legally) to ask you to prove your disability, but a doctor's note could not hurt. We were asked what her 'limitations' were. Maybe just to check we were not trying to buffalo them. <br /> <br />This also works at Universal...
  19. J

    Universal Orlando

    is no one else concerned about the wet environment and all the nasties that could be in that water?
  20. J

    Universal Orlando

    is no one else concerned about the wet environment and all the nasties that could be in that water?
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