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  1. K

    which worked for you better?

    We're not you. This post is kind of silly. Ask your doctor for samples and try it out for yourself. Also keep in mind unless you have have minimal mucus, the inhaled corticosteroids will do minimal things for you as it needs to land on the airway smooth muscle to actually work.
  2. K

    How can I lose fat safely?

    Goherbs87654... not all CF'ers are pancreatic insufficient, meaning not all have a hard time gaining weight. Mutations that are pancreatic sufficient generally support biosynthesis on the CFTR level thus having normal protein, but result in Narrow Channel (Conductance Mutations aka Class IV) or...
  3. K

    Marijuana and CF

    Mary J, actually is as effective against Pseudomonas Aeruginosa as Gentamicin (TOBI/Tobramycin's cousin) and nearly effective against MRSA against Vancomycin, but Mary J is hardly effective against molds such as Aspergillus Niger. HOWEVER, let it be known that, Mary J inhibits the lungs in any...
  4. K

    What else can I take to help with inflammation.

    Cool, raw garlic, I hope you like Burkholderia Cepacia. Also, $6 tea tree oil, sounds Theraputic Grade/ GRAS rated to me. *insert sarcasm here* use too much tea tree oil kiss yourself goodbye. There was a CF'er on here years ago who ended up on a vent because she used too much. Use too little...
  5. K

    How can I lose fat safely?

    If you want ABS, work out your ABS. It doesn't happen in a week it takes months. You can supplement with coconut oil to help burn fat from just your ABS. You do not need to take enzymes with coconut oil because it is absorbed by your liver. Do not take more than 3 tablespoons in a day.
  6. K

    Pulmozyme question. What can I do to get my breathing to 125%?

    Pulmozyme can only stay out of the fridge for 24 hours. Pulmozyme is made from hamster ovaries it must be kept cold to keep the RHDNASE II from denaturing due to heat. If it is just one vial, skip it, no big loss. Why 125% it is a random meaningless number really... If you want the lung function...
  7. K

    Does people with CF process fats differently?

    Absorb/process same difference really. Your Dad is correct. You don't absorb fat normally that is, if you take enzymes, if you don't then you have little/no issue with fat. This is part of CF 101... how old are you? Start by reading some of the question and answer stuff on the CFF site, and then...
  8. K

    When will there be a cure for the Delta F508 mutation?

    Cure? Never. Medication that manages your symptoms that you have to take for the rest of your life? Maybe in the next 20 years.
  9. K

    Manuka Honey treatment for Psuedomonas

    One of the best companies for Ayurveda supplements, Link to their Haritaki http://www.banyanbotanicals.com/prodinfo.asp?number=1041
  10. K

    Pulmozyme reaction

    MMMMMMM Hamster ovaries!
  11. K

    looking for asst application for pfizer??? im out of tobi an hypertonic!!!!!!!!

    Hypertonic is just saltwater.... make it yourself lol. TOBI is made my Novartis Pharmaceuticals not Pfizer.....
  12. K

    Hope for those wanting to apply for social security.

    Once I submitted the papers, I was approved in 3 weeks. Get a lawyer and you'll have no problems.
  13. K

    Trying to rid PA!

    You don't need a script for nebulized glutathione, get a grip. KEEP IN MIND. You get rid of PA, you open yourself up to let other bacteria IN. PA isn't that bad there are much worse out there, make your decisions wisely. Bacterialy dominance is no joke. I'd rather have PA than BC, if NTM, MAC etc...
  14. K

    What else can I take to help with inflammation.

    Gaia is a good brand as well I didn't mention them because they're normally costly. To do the trick, you need Curcumin, Selenium, small amount of vitamin C and NAC in combination. This combination has actually been proven to have similar effect in DF508 mutations as VX809 drugs.
  15. K

    Protein powder and carb loading supplements

    My enzymes were 20K IU so your estimate is on spot. Mutation has a lot to do with it. It depends if the SLC4A8 gene is also corrupted or not. If it isn't you'll have much better absorption. CFTR is only half the picture, but the CFF won't talk about SLC4A8. Sheep. Anyhow.. let's look at it this...
  16. K

    What else can I take to help with inflammation.

    Thanks man I didn't just say that above. It inhibits the P450 Cytochrome 3A4 enzyme first pass drug metabolism. So as long as the drug isn't metabolized by the 3A4 enzyme you're okay. Azithromycin isn't metabolized by it so she'd be fine.
  17. K

    What else can I take to help with inflammation.

    What kind though, unless it is Phytosome or liposomal with bioperine you're probably absorbing a negligent amount. Also remember all brands aren't created equal. Good brands to go by, Jarrow Forumlas, NOW Foods, Doctors Best, Solgar, Source Natural to name a few. I buy from Iherb.com great...
  18. K

    What else can I take to help with inflammation.

    Curcumin, ginger, boswellia extract, licorice root extract, the list goes on. Find what works for you. Do not take any of these with antibiotics that are metabolized by the cytochrome P450 3A4 enzyme though. Easy enough.
  19. K

    Protein powder and carb loading supplements

    ^^^^ His name is Ben MUDGE. There is also another bodybuilder in the UK, Jonny Pop Simpson who is quite remarkable. Coming from 37% FEV1 to 70% reverse damage and doing the impossible. Mudge has a very mild phenotype, so it hard for me to look up to him as "amazing" by any means. I mean no...
  20. K

    Allergies with low IGE

    It should be treated anyway regardless of IgE. There are a lot of papers written by UNC and and Standford, which as you probably know somewhat authorities in CF. They've noted when allergies, aspergillus, or yeast are treated regardless of IgE serum levels, there is noted improvement in BMI and...
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